HELP. Back to square one.

[LucyJane2305]

Hi everyone!

So a little update, I finally had my balance clinic appointment today. They did all the ususal tests, some were very uncomfortable and sparked my anxiety but I got through it.

Anyway, they don't seem to be able to find anything wrong.

The results will be sent to a consultant who will ring me in a few days, but the lady that did the tests seems to think it's all fine.

I've also had a head CT prior to this appointment which was clear, to check for anything.

I just feel like im back to square one with no answers.

Maybe it's just my anxiety that's got really bad that's causing all this? My 24/7 unbalanced feeling.

I've read that anxiety can't cause these feelings and that anxiety is the result of something else.

I don't know what else to do?

What's next?

Will I ever recover?

[Minnie87]

Hi there, i have been meaning to message you.

I had exactly what you had a few years ago.literally 24/7 lightheadedness and off balance.like i was floating and walking on clouds.it was hell.

i couldn’t queue up anywhere or get up off my sofa some days.i thought about this every waking minute of my day and got myself in such a state that i couldn’t function convinced i had a brain tumour.

Then one day i just didn’t think about it.and gradually it started to fade a little.then i moved onto something else to worry about and it faded to almost nothing.

Even though i still get dizziness and now I’m having different symptoms its all anxiety.its a cruel illness but it is all in our heads and in a way that makes it harder!

I found after having my daughter 6 years ago it got really bad and this time i started worrying about my heart all day every day and still do now.but I’m pushing myself to treat this now and read self help books and start to have a life.

I personally think that having a baby when you are already prone to anxiety can make you terribly bad and the hormonal and emotional changes that go with it make it worse.i have had it extremely bad since then and i think it gets worse for a lot of women.

Just remember you are okay and these feelings will pass if you let them and ride them out.it feels awful but you are and will be okay x

[LucyJane2305 in reply to Minnie87]

Hi! Thanks for taking the time to reply to me!

Yes, I do the same thing, I always think the worst that maybe I'm dying or something. I even spoke to my GP to ask if anything was on the scan, and he said it all looked clear.

After this appointment today, I was really hoping it was a balance issue, even though that seems bad, atleast then I would know what it was.

I'm finding it hard to except that maybe it is anxiety because I don't even know if there e is any more tests they can do?

What tests did you have done? How did you get your diagnosis it was all anxiety.

It's horrible, the only time it's gone is when I'm asleep.

I want my life back to enjoy doing things with my son

I may order one of those self help books!

[Minnie87 in reply to LucyJane2305]

My anxiety started when i was a child.I’ve always felt anxious and after i was in an abuse relationship when i was 16 it really started.over the years i have had every symptom known to man.

I got diagnosed in 2007 with GAD and its been on and off since then.Ive had years where i feel okay and then times when its bad again from nowhere.mainly triggered though.

Having a baby has been the worse trigger so i wonder if its the same for you.

I have prayed for a medical diagnosis before because at least then you dont feel like you are going mad.

Ive had so many tests.and even ended up in hospital once because i couldn’t cope.

Its crap and no way to live.but you will come out the other side.its seems impossible now but you will.

And yes grab a book! x

[LucyJane2305 in reply to Minnie87]

Yes mine started a few months after giving birth to my son last year.

I have always been a sort of anxious person, but never this bad until recently.

I find it hard to even leave the house these days.

Did the doctors finally say it was anxiety for you?

I will order one one! X

[Minnie87 in reply to LucyJane2305]

I have seen many doctors over the years and had ecgs,blood tests,monitors etc and they have all said its anxiety.my doctor started to refuse tests because it was just feeding the anxiety and that makes it worse in the long run.

I think that Having a baby changes you mentally forever,and i truly believe that when you have anxiety it can trigger it badly.i had a really traumatic labour and since then have never really been the same.i dont know if emotionally that could be the same for you? x

[gggg123]

If you don't already buy some magnesium oil spray or magnesium glycinate. If you've been tested and it came back ok that's because it always will as your body regulates it but that doesn't mean you're not lacking. Anyway my point is buy some, make sure it is NOT magnesium oxide !! I is pointless to take. But magnesium regulates your body it will help.

[veganese]

Hi LucyJane2305, I think I may have responded to you before, because I have balance issues. I did have BPPV from crystals loose in my ear and that was corrected at ENT dept. I followed that up with vestibular rehabilitation exercises and I began to improve my balance. Unfortunately, I lost my dad, a couple of months ago and my anxiety has been really bad, again. My balance has become worse, too. Definitely related. Mornings are worst of all. When I get up I'm staggering. As the day goes on I feel better. I wonder if it's because I'm more relaxed at night, watching some tv, not thinking about things. During the day I tend to do more thinking in my head, thinking/worrying why I feel so bad, thinking about tasks I have to do, such as getting my dogs out for a walk/run. I feel pressured, because I dread having to walk about. I drive them to a park- which is fine because I'm sitting down - but I feel relief when they've been walked and I begin to relax, a bit, afterwards. I also need to walk to improve balance. I know grief can cause anxiety - I'm so tired, but we should just accept that for the moment our systems are overwhelmed and will recover.

[LucyJane2305 in reply to veganese]

Hi.

Yeah I've seen an ENT and balance therapist where they checked for all that, but don't seem to have anything wrong.

It's hard to think anxiety is the reason for all this.

Living with the 24/7 floating and swaying is really difficult. But if I manage to distract myself, even for a few minutes, it seems to momentarily go.

I've ordered a self help book which should arrive soon.

I've just convinced myself there is something really wrong with me, it's hard to break that cycle.

It all started a couple months after giving birth, which took a toll on me, so maybe it is all stress and panic.

I'm glad You are on the way to recovery.

[veganese]

Yes, emotional and physical trauma can leave an already sensitive nervous system reeling. Everything is exagerrated. I love my music btu I've avoided going to concerts etc, when I know it will be too loud for me! Right now, I 'm just trying to let things be, one day at a time. Have looked out my 2 Clare Weekes books. I've had them for years. She just gives such comfort, reassurance and practical advice. Hope they help you, too!