Last week it was milk spilt on a small Turkish rug - a long job trying to get it out, and this morning, I was rewarded with a lie-in after having been got up in the night and I came downstairs, planning to put the robot vacuum cleaner over the floors, when to my dismay, I found my partner had drenched it in urine at some point last night (it must have been), and I don't know if it can be salvaged. It is the only help I get and I invested in it some years ago to save my back (I now have seven compression fractures). It is heavy to pick up from where it is docked but it did a great job. Then this morning, small thing, but a carer came; my partner asked for a cheese sandwich. Now his blood sugar is soaring because the nurse hasn't been yet to inject insulin, and the carer dropped tomato seeds on the floor next to the rubbish bin. I have a food waste container. The carers are giving me extra work because they're employed to care for my partner but no-one even asks me how I am.
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MaggieSylvie
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How are you these days? Thank you for your thoughts. It's early days here, as John has been home only since last Friday. The new insulin regime does seem to be working - at last! But he is his own worst enemy, doing what he wants when he wants, with no consideration for what it does to his blood sugar. He also has no sense of time, which is probably why he chose to have a sandwich (he asked the carer to make it) long before the nurse came to inject him. They are very short staffed and nothing is set in stone. Yes, when I get a moment, I will call for re-inforcements. It's very difficult when you are on your own, as I'm sure you know already.
I have had a health scare this morning and due to this I have decided not to sit for the landlord and tenant exam in December but by the end of March .
Also, no success on the job front .
I miss my Mother greatly as she is supportive but a very strong little lady and I did my best whilst she was here .
Being an only child we have to rely upon ourselves to do our very bit this can take a toil on us .
All you can do is your best and eventually once John is settled with the correct care package in place , life will be more manageable.
Oh, not another health scare, roukaya. I hope it can be swiftly dealt with. Yes, I'm an only child, too, and it does take a toll on us.
I don't think we have the right care package; I don't think our needs are understood, and of course, this is now all happening under the auspices of a different county council, so it is far removed from the last package, even though the care company is the same one. I haven't seen any documentation laying out what the care comprises of, so it's a bit "suck it and see", but I honestly believe we are getting too much and the timings are too approximate. It's not their fault, of course, but where diabetes is concerned, I have told him he needs to be disciplined. Having just had a hypo, which I rescued him from until he felt good, he is now showing sugar levels much too high. He doesn't read his body very well. It's partly my fault because I had to go out. At least he enjoyed the food.
I hope you are going to be ok and this is just a scare, or perhaps it's connected to your scare a few months ago. Take care,
From what I can see, John diabetes needs to be controlled and his medical and physical needs should be met with the appropriate care package .You need support concerning the care and management of the diabetes of John.
It can be an exhausting job and extra care is necessary.
Since this morning's slight health scare, I should try to reduce the stress .
Thanks for reply and I hope in time John can settle down.
Yes, and I feel we have got the right insulin regime at last, which I'm wondering why no-one thought to implement it before - it's just having three injections a day except the evening one has now been changed too mid-day. However, I don't think the care package is appropriate for his needs - his personality. I expect at some point they will hand the injections over to me because I am with him all day, whereas the nurses come at times when they are not needed or when the injections are poorly timed. Doing all that is not exhausting but he is very demanding and I am physically at risk from further fractures. The more full-on my day is, the more pain I get. It is depressing, though that he does not always seem to know who I am. They have written "dementia" on the discharge letter but he has been tested several times with scans, and they have said categorically that he does not have dementia. He is taking medication that seems to make him delusional and we are trying out reducing the meds in the evening because he says it gives him nightmares. Sometimes he's so lucid and other times, well, just crazy.
Well must go as these days, it's like having a job - I have to be up early.😊
That is absolutely true, Roukaya. Last night was another trial - very worrying but we broke the rules a little, and I really think it was for the best as the blood sugar has come down to a good level now, but very little sleep and then a trip to the dentist, which I think bodes well for the future. We will have to get the carers to help him clean his teeth. Everything goes by the board in hospital and personal hygiene is the last thing on anyone's mind. It's a lovely day now, after the rain, but he is wearing my jacket (!) because he's cold. I'm about to replace my top layer with something a bit less cosy! Hope you are keeping warm up in Siberia. M
It is always challenging to look after someone as a carer given the needs of John.
I know I was at breaking point with my Father until he was sectioned under the Mental Health Care Act .
I wonder if you could possibly contact adult social care and Age U.K. as they are well experienced in dealing with issues like John.
It was a nice day today and I have resumed the job search and the revision gradually as I have noticed stress can cause physical and mental ill health.
I think I can see some light at the end of the tunnel. I have finally got John registered again at our surgery - or at least, I have got the form in (what a form!). I went up to the clinic and got my injections for two months and the charity shops to declutter and bought two coffee mugs that I dreamed of but couldn't find even online. So that was a nice excursion on a beautiful day. When I got home, I had to change John's clothes, but apart from the court-case letters that came today and still have to read, there's nothing pressing - just day to day emergencies. I miss my robot vacuum cleaner but I have a new cordless upright which replaces the cheaper one that I took to charity today. Ironically, that one probably works a lot better now because I really took it apart and cleaned it so it's like new. It's so satisfying getting things sorted - decluttering and having things around one that work. So you see I am really too busy to get help just at the moment - another irony!
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xx
I Don't know what is wrong with me
I don't know anymore
I feel broken & don't know what to do.
I don't know where I am going.
Don't know what to do...
