Incurable Neuro Diseases

[Tbrue74]

In the past two years, I have been diagnosed with four Neurological Diseases. One is very rare and the others are even more rare to have all together. Thankfully, I have found a great Neurologist. Also, it normally takes decades to be diagnosed, if ever. Functional Neurological Disorder, Complex Regional Pain Syndrome, and ME-CFS are all difficult to deal with. I am always in extreme pain and there is no medication that can help. I have started trying different things: chiropractor, massage, weight training, and plan to attempt accupunture. Today is an extreme pain day. The worst I've felt. How do I limit my anxiety and depression? I try Breathwork, Tai Chi, etc....but today is difficult

[LifeIsThePitts]

Body Scan meditations. Learning about how to mitigate my anxiety has been a true gift because when it ramps up, so does my bodily discomfort. Identifying how I tense 😬😶‍🌫️ up my body and where I store that tension within definitely increases my pain levels. Learning how to release that tension with breathing and self awareness has been a gift. I'm still a work in progress... it doesn't happen overnight. I've had 7 surgeries in 5 1/2 yrs. 4 spine fusions, both rotator cuffs repaired and gallbladder removed. Walked with a walker and cane for over 2 yrs. Hundreds of hours of physical therapy and rehab later I can walk and run 20-30 miles a week again. But it nearly cost me my life. However, I can't imagine the pain you're in. Insight Timer meditation app in the play store has the best Free content & I use it everyday.

The anxiety guy Dennis Simsek on YouTube is my favorite teacher. Check out his channel to teach yourself additional ways to heal yourself and learn about how anxiety effects you directly. Feb '22 was the point where I really started educating myself about my anxiety disorder and it's effects on me. Being proactive helped me tremendously in my ability to move forward with healing. I hope this was helpful.💗

BTW...i Love acupuncture. Ive been doing TMS therapy for my treatment resistant depression since Feb '22 as well. It's the only thing that keeps my depression in remission.

[Tbrue74 in reply to LifeIsThePitts]

Thanks so much! I will definitely check him out! Blessings to you on your journey