Hello, I started levothyroxine in February, for what appears to be (central hypothyroidism) After starting Liothyronine in 2017 my previously thin hair started to grow back. Then I ran out of the Liothyronine that a friend gave me to try & raise my basal metabolic rate & very low temperature, & so I found a whole glandular online. But an additive added to these caused a problem with my eyes among other things.
I then found a source of NDT, but then A rare reaction to NDT put paid to continuing with it.
Unfortunately my new found hair fell out in hands full. It has not recovered, & since February of this year (after the Jury service forced me to seek GP blood tests) A random GP was forced to take bloods, & long story short -the following month the GP reluctantly issued a script for levothyroxine. Then I discovered that medics had obliterated my medical records, but were mocking my subsequent hair loss, so no chance of help from them. Dementia is prevalent too.
The Levo was increased based on symptoms soon after by same GP. The almost zero TSH had not changed, but the serum T4 which was previously under range went to more than 50%. I had no choice but to add T3 in the spring/summer as I could not get out of bed. The T3 is only 5mcg but is not helping with anything .
Hair is not growing at all, so I am wondering if the fact that I stopped taking privately bought high dose biotin (for neuropathy) may be the cause - rather than the endocrine or T4 reactions? I am eking out all B vitamins, & only supplement not now taken is Biotin, as I had skewed blood tests from it before, so was wary of taking it when random sudden blood tests were ordered. But am now at a crossroads with an out of the blue endocrinology appt coming up, so maybe I should take what is left of both biotin & T3 to see if hair comes back? I am virtually bald with burning/itching/scabs.
Any one experiencing this? Eternally grateful for any feedback.
Frontal fibrosing alopecia
