Dear friends thank you for your support over the last three month. It certainly has been turbulent. But today I finally escaped from the hospital. Have now been in hospital of the trust. 4 hospitals in all. Enough is enough. Back home having carers coming in 4 x a day. Hopefully that will work nicely. Poor husband is still in care until I can look after him again. So to cap it all. Since November had two ops for the cancer. Last one while in A F. Than a strangulated hernia. Now repaired with open surgery, And on leaving the hospital started to have a stroke in the car home. Next day couldn’t lift left leg or arm. But I am still around😏😏 The Churchill hospital rang while was in hospital so they were informed of my situation. As a result of the last biopsies they would like to try with BCG treatment. Unfortunately they will wait to get me in a state so I can cope with it, I am just happy that nothing much will happen for three month. At least doctors are giving it a good shot trying to preserve bladder. So fingers crossed. Going to try and sleep now, which was impossible in the hospital. So once more I survived. Rienij xx
Latest update from Rienij, - Atrial Fibrillati...
Latest update from Rienij,
Well done R👍 ienij!!!
You are amazing!!!
What will power determination and courage. Noticeable sense of humour too.
You have done all the hospitals , now take back your home and have good night’s sleep!
You put all us moaners to shame! Hope the Carers are to your liking !
Let us know how the week goes.
You have been through so much. Thinking of you. Take care x
Wonderful to hear that you are home Rienij - that should give your spirits a lift. Let the carers take the strain and look forward to having your husband back with you.
Very best wishes - sleep well. xx
Your positive attitude despite all the problems you have had is inspirational and very dignified. A remarkable lady. x
Thank you , not all the time but I try. And the support I get from all of you is truly helpful. 💕💕💕 Rienij
Rienij, you have been through so much and your positivity throughout has been an example to us all. You are a truly amazing lady! I wish you lived near me as I would love to meet you. If you ever fancy a few days in Devon let me know as I would love to spoil you, as you very much deserve that. Wishing you all the luck in the world my courageous friend.
Big healing hug.
Jean x
Thank you Jean. I had a wonderful night sleep. Listened to a you tube recording. Heal your body and your mind while you sleep. And slept like a baby. So good to be home. 💕💕💕💕 Rienij
Lovely to hear. There's nothing like being in your own bed at home is there!
Definitely 🤗🤗
So glad you are home. Your courage and continued humour are definitely inspirational. Best wishes for your recovery x
Just what so many of us need, waking up and reading a touching and also an inspirational story. Thoughts of healing are with you and as someone else mentioned, make sure you use the carers the way YOU want. May the next period of your life be smoother. x
You really have had a bucket full.
I hope that now you are back home you can regain your strength and hopefully be able to get better soon.
I totally agree about the difficulty of sleeping in hospital, being home will make all the difference now.
I only ever had a long stay in hospital when I was 11 years old, I was in for 6 weeks. At that time it seemed like a lifetime to me. I still remember how wonderful it was the day that I got home.
Best wishes for an improvement for you.
Pete
Thank you Pete. It does feel wonderful to be home. Xxx Rienij
You are such a strong minded person I applaud you I would have crumbled away by now Makes my worries seem so small
Thank you. 😘😘
I don't know you but you sound amazing and so positive, an inspiration to us all. I hope you can enjoy your time at home now with your feet up and time to reflect before your husband comes home. Positive thoughts and good wishes coming your way. 😀x
Rienij70- there is no place like home and I am so happy that you are there! You are doing fine and everything will work out. You will be ok.
Do hope your recovery goes well. With four carer visits, the television and, please, some regular updates for us, you will find the days go fast. Cyber hugs coming down the line from me.
Great news Rienij70, hope you get your husband home soon, kind regards Heather
Good onyer Rienij, one fantastic lady!!
You all say such nice things. Thank you 💕💕
You are amazing. One of my closest friends has had bowel and bladder cancer and now has BCG treatment for the bladder. She is surprised how quick and easy it is to cope with so fingers crossed that you find it the same.
Hope so, they have postponed it for 3 month, as it causes frequent urgent trips to loo. Difficult with walking frame. But at same time glad of respite. 😘😘
I can only pass on how it affected my friend. The 'wash' took only a few minutes. She then had frequent trips to the toilet for the rest of the day with some discomfort, similar to cystitis. After that she was fine. That day was a write off as there are strict rules about bleach and use of toilets etc but nothing too difficult. After chemo for her bowel cancer she was really scared and worried but now thinks nothing of it although it is ongoing. The first time she had it done I dropped her off at the door of the hospital and went to park. By the time I parked and got back to the hospital she was walking out having already had it done! I took her a few times but it was always the same and now she pops along by herself. She always had plenty of time to get home and she does not live that close to the hospital. Good luck and I hope you find it reassuring.
Thank you, I think they are just giving my body a chance to recover. Plus can’t move quick at the moment to get to a loo. All in the planning right now. 😏 💕💕
Bless you Rienij, what a journey, pleased to hear you are home with plans in place to support you and your husband. All the very best wishes for some calm times ahead for you both. Take care and well done being so stoic throughout it all. Best wishes. X
Thank you, spoke to my husband bless him. He asked should he try to escape to help me. Changed his mind when I told him that I couldn’t cook dinners. 😄xx
What a fighter you are! So glad you are home at last nothing as good as your own bed.It's good that you have carers too until you grow stronger.
I hope everything continues to improve for you and your husband.We have all been thinking of you. Xxx
Good to hear you are staying strong. Get the most out of those carers, you sound lovely and I’m sure they will soon be dancing to your tune. Hope you get a decent amount of time from them to cover all your needs each visit.
Pat x
Showered, dressed and made breakfast. Opened curtains. Just resting now. 💕💕
So pleased you are home,hope husband will follow soon.Admire your courage andpositive attitude,best wishes for the future.x
Thank you 💕💕
Wishing you all the very best in your journey to recovery - you have had so much more than your fair share of very serious troubles and I am humbled by your humour and positive attitude in spite of them all. And have lots of sleep - you need to catch up after trying to rest in a hospital, I know! xxx
Thank you 💕💕
What an amazing lady you are Reniej and what lovely supportive responses you have had.
Sending love and good wishes to you and your husband.
Sandra x
Thank you Sandra, 💕💕💕
Rienij70 so pleased you are home to your own bed. Your humour is brilliant in the midst of all that is going in for you and hubby I tale my hat off to you. I send you love and healing.💕I paraphrase Brucie "keep on smiling".xxCarole
Wow Rienij, you are an amazing lady. So pleased to read you’re home - you’re own bed at last. 
I hope the support plans work well for you and your husband. Very best wishes for you both. Bless you. Great that you have the strength to see the humour too. Thinking of you x x
Thank you. Getting lots of help now. Physio every day. And equipment to help me. Doing ok hard work but will get there. Xx
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