Good evening my friends, I thought I give you a quick update on my little saga. I was lucky and had my cancer operation last Monday. I am doing well, only wish someone could make me a nice cup of tea. Being on your own is not easy. But never mind I mustn’t grumble I do manage and the NHS came up trumps for me.
As you all know I get paroximal AF. But since all my upheaval last month I have been in permanent AF. I keep getting the funny feeling that I usually get when I revert back, but nothing. They said it was well managed In the hospital, whatever that means. I keep hoping it will go. I wonder if anybody has any ideas? Maybe Bob? I have tried all sorts, blowing through a syringe, drinking very cold water, bending over, excercises you name it I tried it. And you all know I am a bit mad anyway. GP had doubled my Bisoprolol, but I couldn’t hack that, I felt like walking through treacle. So went back to my 5 mg. She then increased my Dioxin. But all the medications that I have been prescribed is causing my blood pressure to go really low. Like 90/54 or even lower, which doesn’t help. If anybody has any suggestions I really appreciate that. Can’t keep bending over to root in the bottom of the fridge, not much in there. I hope you are all staying safe.
Love from Rienij. 💕💕
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Great that you had the operation Rienij but not so the AF although any trauma will make that worse. Give it time and it may well settle down again. Remember there is no cure, only symptom control and so long as your rate is not excessive then as they say it is well controlled. They tell me that wheh you are permanent the body does get used to it and from my experience it is change the body hates.
Hi Dear, glad you are over the operation, and home. I hope your AF settles soon, it’s so maddening to have a jumpy heart. I wish I could hop the pond and make you a fine cup of tea.
Glad to read of your sound progress with your recovery.
Wish I could wave a magic wand for you .... but I can't.
So I guess I can only pick up on a theme of Bob's. My observation is that you have tried the physical things. Your body is an incredible thing, but, even more so is the mind. Over the years I have come - to varying degrees - to embrace the mind/body/spirit philosophy.
Your very being has endured ( over however how long a time it is) massive, massive upheaval. If it were me I would be trying a more spiritual approach to healing. I'm thinking meditation, calming thoughts, and nowadays I have noticed in my GP's surgery notices on the notice board for 'Mindfulness'. That sort of theme is what I'm thinking.
Many, many years ago - further back than I care to admit I read, a book "The Miracle of Mind Power" - Dan Custer. Perhaps a visit to your local library is called for. It is good background reading for my suggestion above.
Hope this helps, its just a thought because whether we like it or not, depending how material we are - the mind/body/spirit philosophy enables us to balance our energy within.
Thank you John, I am doing all of that too. I go to bed with my iPad and choose a suitable meditation/ mindfulness/ healing while you sleep etc. and I like to say I fall asleep with it at night. The only thing I haven’t tried is yoga! Maybe I ought to give that a go too.
This is just a suggestion Rienij. Look on YouTube for a regular heart beat. You should find a recording of a regular beat and perhaps the ecg that goes with it. Watching, concentrating and listening to that for a time has actually worked for some people to become nsr again. When I used to get svt or other arrhythmias during the night I would lay my head on my husbands chest and listen intently to his strong regular heartbeat which would do the same for me.
Glad you’re doing okay Rienij. Any stress on the body, especially things like surgery, can upset the heart, not to mention the emotional stress that goes with it. I wish we could help and make a nice cup of tea for you, or cook you a special meal. For now, it will have to be a virtual cuppa ☕️ 🍰 xx
Rienij, I am so happy to hear that you have had your op and are home recuperating. Such a pity about your AF but you may well revert back now that everything has calmed down a bit. I can't offer any advice I'm afraid. Are you under the care of an EP, or do you have an arrhythmia nurse you can speak to?
You have my sympathy about tea; I am very fussy how I like mine and have a whole large pot to myself every morning. When we travel I carry a little electric kettle and a teapot with me, much to my family's amusement.
Wishing you a swift recovery, and don't lose that lovely sense of humour! xx
I'm glad to hear you managed to get your operation Rienij, but don't like to hear that you're on your own so soon afterwards. Are you feeling really sore and is a nurse calling in daily?
I'd like to magic you into my spare bedroom and wait on you with lots of good tea and food. Yes, you could sit in the lounge and watch t.v. too and when you felt you could manage it I'd drive you to our harbour and we could walk around it a little, or just sit and watch the boats coming and going.
I'm glad you had the cancer operation it must have preyed on your mind . Perhaps now you may feel a bit more settled and that may reflect on the behaviour of your heart ?
Thank you Pete, that is exactly as I feel about it. Increasing beta blockers etc seems to be their answer, it plays havoc with me. My legs were like dead weights. And I might be wrong but sometimes I think they are the cause! I will ask for a referral I have never seen a EP only the cardiologist. And I am not sure about him! AF runs in my family. My mother had it, her sister, my late sisters did. And I think my daughter has too. I keep telling her to get checked out. In the mean time I try to stay calm and ride out this storm.
Rest, relaxation & time for recuperation really will help. Be very careful with low BP, that can make you feel horrible. Lots & lots of fluids ie water & increase salt intake up to 6g/day may help.
I tend to agree with Pete - if meds GP are not helping then maybe time to look for specialist input- you could ask your GP to contact specialist for suggestions? My GP has done that several times for me.
I do hope you have support for food & Med delivery? Being on your own is tough when you’re ill.
Best wishes & hope you soon recover strength. CD xx
Thank you, very sound advice. It is ok I shop on line, they used to take it into my kitchen but ofcourse they can’t at the moment. But I have plenty in freezer and larder. So I am ok. Meds are being delivered too. And you are right low blood pressure can make me feel a bit wobbly.
I will ask my GP for a referral. Difficult at the moment, but this all will pass at some stage. And maybe they do phone calls or Skijpe.
So glad you got your op when so much has been cancelled. I think you have to give yourself time re the AF. I would stop trying to put it back and concentrate on something else that absorbs your mind. Plus some mindfulness and some absorbing hobby. I was in persistent AF a few years ago and must say I actually got used to it and managed to carry on with my life until my first ablation. I hope you recover well and you are back to normal soon. Hugs coming your way 🤗🤗🤗
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Three month update
Update from today
Concerned about coming off medications. ..
