xtandi - change of taste ? - Advanced Prostate...

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xtandi - change of taste ?

Tinkudi profile image
10 Replies

Dad was saying since some days he feels a sweetish kind of taste in mouth. I have read some people can have a change of taste as a side effect of enzalutamide.

He is on relugolix , enzalutamide and have added 2000 mg metformin since a month.

Anyone here experiences similar ?

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Tinkudi profile image
Tinkudi
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10 Replies
Clippedwingz profile image
Clippedwingz

Been on Xtandi 6 months and no change in taste for me.

lcfcpolo profile image
lcfcpolo

No change in taste either for me. Over 4 years on Enzalutamide and almost 4 years on Metformin but I have quarterly Prostap injections, not relugolix.

Mascouche profile image
Mascouche

I am on relugolix and enzalutamide and my taste is not impacted. Neither was it impacted when I was on Lupron and Zytiga.

Has your dad recently begun something like a keto diet or fasting? That can make someone perceive sweetness more profoundly. For example, to me milk or bread taste quite sweet because I do keto and fasting.

Tinkudi profile image
Tinkudi in reply toMascouche

No keto or fasting. But I googled it and came across some other posts of similar experience on xtandi. His taste is not impacted but just that he says he sometimes has sweetish taste in mouth

CousinGrandpa profile image
CousinGrandpa

I’m on Xtandi 6 months now and have noticed some taste change, mainly sweetness is different.

Tinkudi profile image
Tinkudi

Kaliber one post I read was by you some years ago regarding this. you had similar experience ?

Kaliber profile image
Kaliber

yea I thought I did, but looking back I think it was the Zometa pain train I was receiving at the same time. Buds working great now, too great prolly rotflol.

Entered my 7th year “ no man’s land “ on Xtandi this October the 20th

❤️❤️❤️

Tinkudi profile image
Tinkudi in reply toKaliber

I wish you will have many more to come 😊🤗

Kaliber profile image
Kaliber in reply toTinkudi

❤️❤️❤️

OldGolden profile image
OldGolden

I'm on Orgovyx ( regugolix ) 120 mg and Erleada (apalutamide ) 240 mg. I take the Orgovyx in the evenings and from the first day I started on it I had a metal taste in my mouth. At first it only lasted an hour or 2 but now after 6 months it is worse and all the time. I doubt there is a direct connection but as my PSA lowered the taste got worse. I have found nothing that helped.

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