When it rains it pours - Newest 4th Med Onc visit 2 days ago. Extensive ~ 75 min. Most comprehensive cancer eval ever.

[depotdoug]

New MO: castrate sensitive prostate cancer Dx'd 2005(gleason 3+4). FFWD to Feb 2022. Only on Abiraterone 250mg & 5mg Prednisone, but 12/15 PSA 0.156 then 2/14/22 PSA jumped to 0.300.

FFWD 2019: 68Ga-PSMA-11 PET 08/01/2019 showed local prostate gland recurrence, regional lymphadenopathy and possible bone mets. 1st start of Zytiga Dec 2019 only 250mg daily due to concerns (severe) of cardiac toxicity, due to multiple cardiac arrhythmia's.

Yes my PSA doubled from 0.156 Dec to 0.300 Feb 2022, yes I've been off Lupron since June 2021. Despite last dose of Lupron June last year, MO suspects I am spontaneously castrated and may not need more Lupron. Ok. My new MO made sure that I understand that stage IV diagnosis staging, my PCa is likely incurable but potentially treatable. I believe I already knew that.

What's next for DepotDoug? Will continue on Zytiga 250mg (because of cardiac issues) w/5mg prednisone. Monitor PSA's and Testosterone levels in three months or sooner if "clinical symptoms" rise. Will more than likely repeat PSMA -PET Scan and switch to Xtandi or Chemotherapy.

Yes, Doug(me) is being referred to Pallative Oncology (reasoning excessive anxiety, uncontrolled energy, worry) soon, waiting on scheduling call next week , unless I call first.

Yes, I was concerned, worried as to why I was referred from last MO to this new MO. Now I know the reason why. He is so conscientiously, meticulously concerned with my entire PCa care and treatment. Beside Parkview Cancer Institute, Ft. Wayne IN is affiliated with MD Anderson Network(Cancer Center).

Update for now. I was overwhelmed by the RN's, NP's Nurse navigators and even Pallative Care people that came to see me Thursday.

Doug

[bobdc6]

Looks like you're on the right track, hang in there!

Bob, G4+5 (treated), age 80, PSA, 0

[dhccpa]

Why did you stop Lupron? And how long were you on it?

[depotdoug in reply to dhccpa]

Re-started Lupron Depot Sept 2019 stopped it June 2021… 22 months on total.Reason stopped: I was having more and frequent cardiac AFIB arrhythmia issues.

My then 3 rd MO said ok to stopping reluctantly.

Now I am glad I did.

Plus Jan 4th 2022 I had a very successful cardio focus heartlight laser ablation.

My PV(pulmunary vein) and I can breathe so easily its wonderful feeling.

Plus loosing some weight.

My newest 4th MO knows I’m on No Lupron

And agrees that I may be very well castrate sensitive resistive( if that’s the correct terms)

Dr Zhang will decide with my next PSA and T - level labs May 14th if I need to restart Lupron or is it a not necessary injection now.

Castrate resistive level? Interesting.

Hope this helps. Oh without a functioning Heart you cant fight cancer.

[dhccpa in reply to depotdoug]

Thanks

[j-o-h-n]

Like pouring salt in the wound.....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/27/2022 7:37 PM EST

[depotdoug in reply to j-o-h-n]

Salt in heart means salty heart.What would we do without Na2 less Popcorn?? 🍿🍿🍿🍿🍿

Great response J - O - H - N