Hello All- intro: Prostate removed at... - Advanced Prostate...

Advanced Prostate Cancer

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Hello All- intro

kawmagnum profile image
10 Replies

Prostate removed at age 61, I am now 70 with advanced metastatic prostate cancer in bones and lungs. Been on Lupron for three months. Testosterone is low and Oncologist was surprised by worsening conditions on first set of scans, PSA at 7 and increase in some other indicator. Recommends docetaxel asap and a biopsy of my lymph nodes. I started care at Duke and am now at MDA. I have a perscription for Zytega but prefers I do not take that now as it may effect ability to enter some trials. I have no noticeable bone pain or other symptoms and am in good health and condition otherwise. Seems like I am in good hands but I wanted to avoid chemo if possible. Any input is appreciated. Thanks

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kawmagnum profile image
kawmagnum
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10 Replies
savingdaddy profile image
savingdaddy

My dad is 76 (this month) and fighting advanced PCa (see my profile). What does MDA stand for? I wish you the very best with your treatment. Let us know what you MO plans to do. And nice to meet you. Kimberly

Tall_Allen profile image
Tall_Allen

It is tragic that so many men avoid chemo. Especially with your lung met, it is the single best thing you can do for yourself. Docetaxel is known to increase the quality of life, extend life, and markedly reduces bone bain. Unfortunately, it's benefits and its tolerability decreases the longer you wait.

kawmagnum profile image
kawmagnum in reply toTall_Allen

MD Anderson, Duke is excellent and a .2.5 hour drive, MD Anderson seems to be on top of Immunization therapies for our disease, but 5 hr flight. Just trying to get the best. I am going ahead with the Chemo from all I read here, i am likely to tolerate it well. I havent been delaying. The appointment and scans where 2/28, appointment 3/1, so working on schedule.

Tall_Allen profile image
Tall_Allen in reply tokawmagnum

Immunotherapies for prostate cancer have been disappointing. Maybe one of the combos that they're testing will do better. It's not something I would put a lot of faith in at this point.

in reply toTall_Allen

It’s such a common fear isn’t it..

Zetabow profile image
Zetabow

Going through Chemo right now, it's a walk in the park compared to the bone pain. I was apprehensive about the Chemo but it hasn't been as bad as I thought, third day get tired and have Flu like aches and pains for around 3-4 days then start feeling better. Oncologist said Chemo will help the bone pain so I went for it.

larry_dammit profile image
larry_dammit

Lost my father in law to the same time frame . Get on a monthly regiment of tests so it doesn’t spread to rapidly without you knowing it. The monster is a awful sneaky SOB. Good luck 🙏🙏

kawmagnum profile image
kawmagnum

Thanks so much for the reponse. Actually my PSA is 4.9, And I don't seem to have any bone pain. I qualify that because I have joint pain when I work out. Work out rather vigorously 3 times /week plus Pickleball.

monte1111 profile image
monte1111

Extensive bone mets and abdominal lymph nodes. Started my lupron and 8 cycles chemo 2 years ago end of this month. Xtandi 18 and a half months. Lymph nodes now normal size and bone mets subtle and no new mets. Probable bone scan in April - hope no progression in spite of having .2 psa and last alkaline phosphatase about 65 (may be other indicator you were thinking of?) Do have a page full of side effects but deal with them. Have seen CBD oil mentioned so much, I think I am going to give it a try. Almost 67 when started this. Good luck to you sir.

Shooter1 profile image
Shooter1

With soft tissue mets, hit it with docetaxel/taxotere as soon as possible. Shot mine right down.

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