Here's the latest stats regarding my dad's treatment:
Diagnosis July 2018
PSA - 680 (mets to 5 retroperitoneal lymph nodes and 2 bones)
PSA doubled to 1200 in one month!
Began treatment 8/18 starting with Casodex. In one week, his PSA dropped to 470! (just Casodex)
Last week received his first Docetaxel infusion, Lupron and Xgeva. WBC=12
WBC dropped to below 1 today. Received Neuopgen. He will probably do more Neupogen the next few days.
Side effects so far: abdominal pain, intermittent constipation, diarrhea and FOUL gas (lol) Feeling fatigued and worn down. Magase is helping his appetite and nausea.
The battle has begun!
After my first Docetaxel infusion, my wbc dropped to 0.5. They pumped me full of Neulasta and a week later my wbc was up to 6 something, (within normal range). Don't despair,(If you are) they gave me Neulasta after my next five infusions and everything was good. Sounds like your father is going to get through his chemo treatments just fine.
That's great encouragement! We are nervous about the WBC and I was hoping to hear that this was par for the course. I'm glad to learn that your numbers went up. With a little boost from the Neupogen this week, perhaps his will, too. Thank you for easing my mind.
I would suggest taking a claratin and an aleve the day before , day of and day after nuelasta/Nuepogen to relieve bone pain in legs and hips caused by nuepogen drawing white blood cells out of bones. If his temperature goes to 101, that is an emergency, call the Dr in middle of night. That said I think the Nuepogen will work just fine and raise those WBC.
Thank you Dan59-
This forum has truly been one of the most beneficial resources since his diagnosis. I've put a lot of time into researching PCa recently....trying to understand it myself so as to better help him but honestly, all the research in the world can not compare to the real life expressions and suggestions of people actually going through it. So, just today after checking the forum, I went out and got Claritin and a new thermometer! Your helpful advice is helping others! Thanks so much
I would recommend getting a professional thermometer, the same ones they use at the hospital. I will not do chemo again without one. I ended up going to the ER with a borderline fever, but had a 3 degree spread between the 3 thermometers we have. It was frustrating and stressful.
Oh my Greg57-
That's a good point! I purchased a regular digital from the local pharmacy. Probably not as accurate. I will check into a professional grade
I may have made an unnecessary trip to the ER because I couldn't be sure which one of three was correct. When I got there, my temperature was slightly elevated, but below 100.4 so not sure whether it went down on the way or was never really above 100.4. They found nothing wrong and by the time I left, my temperature was pretty much back to normal. I had a lot of stress and some good sized co-pays. I could always argue that it's better to err on the side of safety, but even better to have an accurate thermometer.
His wbc will go up, don't worry. It it were me I would keep your father away from crowds, etc until his count raises, which it will. Dan59 gave great advice regarding body temperature. Neutropenic fever is a slight concern. Have his temp checked if he complains of fever like symptoms. He will be just fine. My doctor freaked out when I told her I was out running (miles) with a wbc of .90. Hey, i felt fine! Relax, this happens.
Running miles!!!!! That's incredible! Thank you for the positive reinforcement. All of the grandchildren went back to the Petri dish.....I mean......school yesterday. 😃 He will have to monitor visits with them I suppose. When he is feeling better, I suggested a mask.