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Adenomyosis Advice Association
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19 years of age

I’m 19 and have adenomyosis and everyone is talking about having a hysterectomy....

Symptoms, triggers, flare ups, pain relief...what are yours?

Hello ladies- hope you are all well and coping ok during this horrid period in t...

Pain Relief

Does anyone know of any alternative pain relief options for endometriosis / aden...
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Positive experiences of the coil?

Hello- hope you have a pain free day today. I'm looking for some positive experi...

Back pain

Hi! 49 yrs . Been having back pain for over a year. Within this year changes in ...

Has anyone been able to opt for surgery/hysterectomy without going down the mirena / hormone route first under 40??

Hi everyone, adenomyosis was seen on my recent MRI and i have a history of endo....

Posting for my 20yo daughter

Sorry if this is a long post... So my daughter has had the most painful periods ...

Endo? Extreme pain

So I’ve been waiting for my appointment with a gynaecologist for around 4/5 mont...

Adenomyosis & Injections

Hi all, I’m quite new to Health Unlocked, so I thought it’s about time I should ...

Laxatives and low fodmap

Hi, I have posted this also in A few other networks but am desperate for a quic...

I can’t take Hormones

Hi 👋🏻 I have recently been diagnosed with Endometriosis and Adenomyosis. I a...

PMDD

Hi, I had a hysterectomy two years ago due to adeno, they left my ovaries intact...

Adeno and pain when eating in stomach, why?

Does anyone else get pain when you eat it seems to get worse every time even som...

Back pain post hysterectomy

Hi, I'm 15 days post total abdominal hysterectomy. Having lots of back pain, all...

Can't cope

So today my pain is killing me I have it all day everyday but when I'm on my per...

Dont ever give up

Hi, On Friday I finally realised that I have adenomyosis as well as endometriosi...

Hoping for answers

Hello I’m new here, I don’t even know where to start tbh, so 8 years ago I start...

Adenomyosis

Hi just wondering if anyone has been prescribed ESMYA for adeno, I tried the mar...

Adenomyosis and the Mirena coil - advice please!!!

Hi everyone, Two days ago I had a transvaginal ultrasound and then had the Miren...

Adenomyosis/Fibroid - which treatment?

So an update following on from my recent Haemoglobin levels crashing and resulti...

Ttc due in 4 to 6 days. Cramping for 3 weeks. Struggling

Looking for kind support. (Sorry long post).. related to gyne conditions and pos...

Orgasm Pain?

Hi everyone :) I've been diagnosed adenomyosis for around six months now, but I...

What will happen with false menopause injection

Has anyone suffered with a extended bowl n bowl problems with adenomiosis and al...

I had my opp in november and i am still looking 9 months pregnant and in pain

Hi i had my op in november i had my endometriosis removed also a blood cyst and ...

Could someone help me?

Hi. I have been having troubles with my periods since they first started at the...

Am I the only one?

Hi everyone, I would really like to hear some of your thoughts/experiences. I’...

After surgary on the 30th november

I had a op yesterday i have endometriosis also had a cyst burst and a biopy take...

Could I ask what symptoms people have and how they were diagnosed please?

I've just been told a patch of endometriosis appeared on my MRI scan in my uteru...

Adenomyosis Specialist

Hi I’m looking for an Adenomyosis specialist in Leeds/West Yorks area NHS or pri...

Help! new to all this

Hi, this is my 12th week of continuous bleeding and pain, had an urgent gynae ap...
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