Hello - hope you are all as well as can be.
Looking for experiences from those who have adenomyosis and are going through /have gone through natural perimenopause/menopause.
Did any treatments help with symptoms?
Any treatments make things worse?
For those in natural menopause - how are your symptoms now?
I'm in perimenopause (still having irregular periods) and unsure of what to do in terms of hrt etc as I'm terrified of making things worse.
Huge thanks in advance
Gill xx
Hi Gill. I have adenomyosis and suspected endo( waiting for lap near 2 years now). I am 53 this year and can say that the last decade of peri and meno has been really tough( esp as I only received adenomyosis diagnosis last year after years of medical has lighting and suffering) things have improved now i don’t bleed yet I still get symptoms which can still be framed by medics as other- fibro/ meno/ mental health/ stress/ ibs / cf- long covid. I find it impossible to discern as do medics it seems and have given up logging as no one’s really interested I find and in my appointments it’s always a rush. Anyway I did start hrt everol conti in feb so am used to the patch now. I have noticed that I certainly have more muscle strength returning and weep less and feeling more resilient overall - yet I have more migraines and still suffer ibs/ bloats/ food blocks which feel like adeno belly or growths that flare up and down. Hrt hasn’t made me worse but hasn’t taken away fatigue/ brain fog or all symptoms . Which no review yet since endo gynaecology ( 1 fave to face) I am feeling stuck again as it feels like I am left to work out everything … discern symptoms as best. I would say trying can’t do any harm and you need to wait a few months before the hrt settles ( there were a few random or familiar twinges and symptoms in this time ) but I’m not worse off- at least I’m not dragging my legs along now and seem to have less bouts of numb legs, arm on left side- less pelvic pain. I will wait for my review and lap but even here am nervous to have a lap after years of dismiss I worry what’s actually real when you have to push so hard to be heard. I would also say yes get a referral to an endo specialist to discuss and monitor. Hope it helps a little. X
Hi there! Thanks so much for such a detailed response. I'm about to start hrt- tomorrow! I'm just so desperate to feel better. I'm starting on the lenzetto spray and utrogestan. Testosterone hasn't been ruled out in the future. Utterly terrified tbh but I can't go on like this.
I don't have endo apparently. Specialist lap back in 2019. My fourth lap. Was diagnosed with endo back when I was 17 and had it lasered in my late 20s. Had 2 babies in my 30s and breast fed them both for a year with no period so perhaps that all helped it not to return (still have my doubts that something wasn't missed).
Thanks so much again- nice to feel that I'm not alone!
Gx
Excruciating lower back pain