extremely worried - FSH and LH levels

[BlueVelvet94]

I was wondering if anyone could provide some insight on FSH and LH. I am extremely worried and upset and would be grateful for any help. I am a 29 year old female and I was diagnosed with PCOS back in August 2017 (due to an enlarged right ovary on a scan coupled with hair loss, some acne, facial hair and slightly more body hair). In May 2018, I was finally diagnosed with endometriosis following lap surgery. The endometriosis was extensive in the pelvic region but was not in the ovaries or fallopian tube.

I have been using the combined pill along with spironolactone since August 2017 to December 2023. I stopped the combined pill as it gave me headaches, a scan from a neurologist showed no tumours or growths in the brain. I tried the progesterone only pill for 3 months this year, it is called Slynd. I stopped that as it gave me terrible pain and bloating.

Whilst on Slynd, I undertook a full set of bloods. The FSH was an alarming 72.5 and the LH, 22.6. I am worried to death. I saw my endocrinologist who had the results in hand and he didn’t provide any comment. I emailed him back and I’m now seeing him urgently within a space of 3 days.

My GP has tried to reassure me and stated that Slynd can distort readings and that it’s best to wait 1 whole cycle before doing another set of bloods, and then do another set of bloods a month later to rule out perimenopause. I have been incredibly upset and on the spur of the moment, spoke with a private GP who said ‘you don’t have PCOS, you had perimenopause since being a teenager, but I guess we will never properly know.’ This has truly broken me.

I checked my FSH and LH levels from reports dated 2017 and they were not high. I’m not sure what to make of all this. If anyone has any insight that would be amazing. This sounds like a sob story j know, but it’s really a dream of mine to have my own children and that’s why I’ve spent many years on trying to save enough money to enjoy life a little bit as a potential new mum. I’m just so very lost and broken.

[Lenore58]

Hi Dear, I have no insight for you, but I read your story and just want to say I’m so s you are going through this. I hope someone comes along soon with helpful insight, and I’ll pray for you.

[BlueVelvet94 in reply to Lenore58]

Hi Lenore58,

I'm really sorry for the late reply. It has been a week of highs and lows, and when the lows are low I find myself sleeping so that I don't have to think about what is going on. I've seen my consultant again, and I'm arranging some private care so that I can get a better look into everything. Thank you for your prayers, it means a lot to me. I hope you have a good weekend.

[MOLLYMILO007]

So so sorry to hear your sad story and health issues...have u gone private to see a gynie I don't know what country your in...but even though the NHS are marvelous in the uk if I'm worried and what quick answers or support I go private its around 150.00 to see a consultant but u are seen fairly quick..I'm sorry you are in this awful situation at such a young age feel for you terribly ...jeanette x

[BlueVelvet94 in reply to MOLLYMILO007]

Hi Jeanette,

Thank you for responding, it really means a lot that you took the time out to do that. I've been referred to one of London's top gynae centres but with the NHS waiting list, it is just too far away and I'm looking for a response as soon as possible. I'm arranging a gynae appointment for next week (I tried to have one this week for an internal scan but the appointment went horribly so I am on the search for another doctor). Thank you for your support x

[MOLLYMILO007 in reply to BlueVelvet94]

Lots of good luck I'm sure u will be fine honest I had ultrasounds internally aswell not pleasant but didn't find anything sometimes we have pain and then it goes..have u tried eve primrose and starflower oil hun that's good for gynie issues x