Hi all 😊

[jojokarak]

I wanted to see if anyone on here has ever been diagnosed with fatty liver?

I got diagnosed with pcos when I was 33 after a few years of testing... Even though I had all the obvious signs, anyway 2 years after I was diagnosed with liver cirrhosis, my gyno was convinced it was through the fatty liver and asked for a biopsy which confirmed it in his eyes. Anyway I needed a liver transplant 18 months ago ..

I never had periods before and since transplant I have had one every month which is amazing 😊

I had an appointment at my transplant hospital on Friday and I have been informed that I am again starting to get fatty liver which to me confirms it even more how truly horrible pcos is ... At least I have a warning now and can resolve this with diet and medication

I am just truly curious to find out if anyone has had any similar diagnosis ?

[Liver3]

Hi Jojo! I have been diagnosed with PCOS and fatty liver and now cirrhosis !

did all the Hep c treatment cleared that no issues! But now dealing with the systoms of pcos. I don't understand this pcos very well. But worries me not enough is being done.

what are your doctors doing for you and how are they treating it with what meds?

I need as much info as possible. I have been exercising eating wiser and losing the weight. What meds are you given for pcos???

[jojokarak in reply to Liver3]

I will be starting back up on Metformin I was on it prior to being diagnosed with cirrhosis and in 6 months of being on it, I lost six stone even though I didn't change anything in my diet previously ...

The last year I have been a bit lax so have been enjoying life and eating a bit of junk but not enough to cause the fatty liver so all sugar and salt will be eradicated ... Have you been referred to a gyno? The thing is now if you have been diagnosed with cirrhosis they will concentrate on that now all my treatment for pcos was put on hold whilst I was poorly... Where abouts are you, if you don't mind me asking x

[Hidden]

Hi

How are you feeling tonight?

I was first diagnosed with nafld in may 2016 after having had to pester them when they kept on saying nothing was wrong. One consultant said it must be muscular, in other words he didn't want to know!! I was only diagnosed then because I went private for a diagnosis in which he also said it was caused by all the meds my drs had given me. In the September of 2016 my current consultant said I'm willing to treat you in the NHS as you've spent enough money!! I was diagnosed with Nash in November 2016 after a biopsy, the pain feels like when I had gall stones in 1985 when my gall bladder was eventually removed.. Love and hugs to you all xxxx

[SamHodge]

Hi there,

I am 33 yo, and was diagnosed with PCOS last summer. I was put on Metformin for my insulin resistance. I first went to a gastro a few years ago because I was getting these intense nausea/vomit attacks every few months, and never after eating a "greasy fat meal", but always after toast or cereal or potatoes. The gastro did some tests and ruled out gallbladder issues, but the U/S showed a fatty liver. He said not to worry about it because everyone has a fatty liver...he had nothing else to offer, and suggested trying antidepressants to help my stomach...or lower my stress levels (which is impossible with 5 kids). Also, I don't drink any alcohol.

I was so frustrated I decided to try an endocrinologist that diagnosed my PCOS/Metabolic Syndrome just hearing my symptoms. However, nothing was done about my liver.

I hadn't had an attack since starting Metformin 9 months ago, but I just did a week ago. It lasted 4 hours, during which I forced myself to get the bloodwork done to see what it showed during an attack. It came back with elevated AST/ALT levels (43/53 iu/L). I started educating myself by reading scholarly articles and watching Youtube medical conferences about NAFLD/NASH, and I have scheduled an appointment for a Fibroscan on Tuesday. I fear it has progressed to NASH, no thanks to my antidepressant-pushing Gastro.

I know the treatment/reversal is through lifestyle changes and my husband and I have agreed we have to do it. I have totally cut all breads/pasta/rice/cereal. I started drinking a cup of coffee (never have)--it has liver protective properties. I am losing weight and essentially going through a detox for my liver. I know if I don't I will be severely trimming my life expectancy. My resting HR has already gone down, and I expect my BP will too.

I would like to update after my fibroscan and we can all share advice. As of right now, my advice to share is:

cut cereal/rice/bread/pasta/potatoes out

drink a cup of coffee daily, or green tea--otherwise only water

cut sugar, even eating a very minimal amount of fruit

watch dr. reddy (cardiologist) very informative Youtube videos on NAFLD

Some favorites I like to fill up on:

sweet mini peppers, tomatoes, carrots, snap peas, (all great w/ hummus!) pistachios, gouda cheese, eggs, baby cucumbers with viniagrette, olives and olive oil. Right now I am in the beginning of an extreme transition of my diet, so basically I eat what I want and how much I want as long as it has very little or no carbs, or at least no carbs from processed foods. I still eat beans (legumes) despite the carbs, and some sweet potatoes, as they have fiber.

Basically, this means you shouldn't be needing a pantry anymore; you need extra fridges/freezers! Also, don't buy any canned goods. If you want long-lasting vegetables, buy frozen.

I used to want to eat better/exercise because I wanted to still look good for my husband and fit in my clothes. I gave up on that because I just love eating good food. Now that I know that my diet was not only causing extreme pain, but actual damage to my liver, that was the impetus for me to just do it. Find vegetables and carbless snacks you like. The coffee gave me energy to do more around the house and burn more calories.

THE DR REDDY videos were the most inspiring and informative. As a cardiologist, he realized that nearly all the disease that kills the majority of people today, started in the LIVER. Since NAFLD/NASH have typically no symptoms, it's a serious 'silent killer'.

Search google for "fibroscan chart". I was surprised to see that the stiffness (fibrosis) level at 11.5 in NAFLD patients was equivalent to 22.5 in Alcoholics! If ours get over 10, our livers are basically as damaged as a cirrhotic alcoholic. I never knew how absolutely useful the liver is with over 500 processes. It has such a resiliency that it can regenerate even after some cirrhosis! It just takes devotion to treating it right with fewer carbs, no alcohol, fewer medications and slow weight loss. Consistency as usual, is key--It takes on average 3 yrs to reverse liver damage completely. And every time we slip up or have a 'cheat day', we are setting back the clock.

Hope we can all have better outcomes by the end of 2018.

God bless!