So, from previous posts, readers will note I was diagnosed with churgg strauss in April. Consultant (renal because it attacked my kidneys), put me on mexa prednisolone, followed by 12 weeks on cyclphosphamide then onto 150mg per day of azathioprine. After 3 weeks I was re-admitted to hospital with fevers. All meds stopped except for 20mg per day of prednisolone, which incidentally is a maintenance dose I had been taking for years. During the cyclo, I felt terrible with fatigue, muscle weakness etc. Having not been on anything except Pred now for 3 weeks, I estimate I am 80% of the person I was before all this started. Mentally though, I still get headaches and stress related symptoms. Letter from the consultant to my GP today, states I have no vasculitis symptoms, bloods are normal except for a low white blood count and kidneys have recovered well. The plan after 4 weeks is to wean me off Pred and onto 100mg per day of azathioprine. The current 'thought' process is I was over supressed and my immune system needs time to recover - all sounds plausible.
Please dont get the wrong idea, I am very grateful and relieved to be feeling relatively normal again. My question is this - is this what remmission feels like or I am I currently living in a fools paradise? I would be interested to know how others have faired at this time. FYI I am Panca confirmed via kidney biopsy.