Un-Diagnosed Rashes: Hi. My Name is Dan im new... - Vasculitis UK

Vasculitis UK

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Un-Diagnosed Rashes

DanDuan profile image
5 Replies

Hi.

My Name is Dan im new here.

It was recommended that i post pictures of my rash here.

I have multiple Issues and symptoms all explained here:

healthunlocked.com/lupusuk/...

If anyone relates to theses rashes or have any idea i would love some feedback.

upl.co/upload/g5Qb8Ua2X

upl.co/upload/g2Ll8Sr1O

upl.co/upload/g4Pv2Yi5G

upl.co/upload/g3Yw8Bw1R

Thanks.

Dan.

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DanDuan profile image
DanDuan
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5 Replies
Boudica1 profile image
Boudica1

Sorry to hear of your problems, sorry I can't diagnose what your rash is. I can have a number of different spots and symptoms depending on where on the body and even the time of year. I have Vasculitis and suspected Sjogren's so now have to have another biopsy this time from the lip.

I saw by your link that you are in the R.O.I., I lived and worked there for a lot of years and know from personal experience what the health system is if you can't afford private health insurance.

I really hope you find the answers and diagnosis you need. Even here at times it feels like you are going round in circles but it is a difficult thing to get a diagnosis for.

Remember GPs are exactly what the initials are, general practitioner's and more than likely never have seen someone with an autoimmune condition let alone studied any of the diseases.

Hope you find the answers soon.

Hi. I read your other post. Poor you. I know nothing about Ireland's system however, it would be worth you phoning the vasculitis uk helpline as they will know who your vasculitis specialists there are. It's a rare condition so the specialists are few and far between but I'm pretty sure I've seen on the vasculitis Facebook page that there are ones in Ireland. The number is 0300 365 0075 and the people manning them also have vasculitis so they understand, are hugely knowledgable and will guide you in the right direction. Good luck.

DanDuan profile image
DanDuan in reply to

Thankyou for reply. .

I am currently in hospital recovering from lung removal op.

But when well enough will check it out.

Thanks again.

Dan.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply to DanDuan

Could I ask why you have had your lung removed? If you don’t mind me asking

DanDuan profile image
DanDuan in reply to Suzym2u

During investingation in may to multiple aches across front and back of lungs.

i was sent for CT scan as bloods and xrays showed nothing.

The CT scan showed a 16mm nodule deep within my lung. PET scan showed no activity(good) But the Nodule was too far in to do Byopsy. so only way to be sure is to remove and byopsy. This required removing half a lung to get to nodule.

I will get results in two weeks.

Intresting thing is... They tried for nearly a hour to put in a Epidural.

They could put this in as i had so many Ostephytes going down my spine.

This im thinking may be the cause of multiple aches and pains.

And maybe indication of Osteoarthritus. we shall see.

Thanks for your concern

Dan.,

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