For about 2 weeks, I've had swelling and purple discoloration under my eyes. It's as if the usual dark circles you might have are now swollen and extend to the outer eye. Rheumatologist didn't know what might be causing it so went to eye doctor who performed an exam and said there was nothing wrong that he could see and said it was probably from the Prednisone.
This morning I woke up to swelling above the eye. With my eyes wide open, I can't see the upper eye lids or eye lashes because of the swelling. I don't see any discoloration above the eyes. I haven't had the facial bloating from Prednisone for some time now and it originally went away when my Prednisone was lowered to 10 mgs.
Anyone have this same kind of swelling or have any ideas about what might be causing it or what I should do?
Background: 54 years old, diagnosed with Wegener's GPA in Dec '16. Last two infusions of Rituxan in late summer and subsequent test results showed negative for Vasculitis for the first time. I am currently on 10 mg/week of Methotrexate, two injections a week of Acthar, and 4 mg/day of Prednisone. The Prednisone is likely to be increased back to 5 mgs because blood test results for inflammation are too high. The plan is to have two infusions of Rituxan a year as long as the Vaculitis numbers are negative.