I have been told Wegeners has been mis diagnosed but the fear is here.
My nose has gotten elastic feeling at the tip and sides of nares. The inside of my nose also feels spongy.
This morning my right eye hurts and I got a one Kleenex worth of bloody nose.
I already have Giant Cell Arteritis and Polymyalgia Rhuematica and been taking prednisone for two years. At one point I was down to 7 mgs from 50 mgs but flailed and ended back up at 20. Now tapering slowly am at 15mgs.
I don't know what to do as on some of my charts it says I have Wegeners and so it is confusing at best. I am 66 yrs old.