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Adrenal tumour - anyone here with experience with it?
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Incoguto
in
Thyroid UK
1 month ago
Need encouragement :(
Hey all, I'm in a pit 🙃 since November haven't been able to go to the shop, I manage some walks around the block and do my kettlebells in the morning. My main issue is fatigue, dizziness, dehydration (lowish sodium). I also get hypo symptoms like water retention, I'm 9 kgs overweight, my hair is
Hey all, I'm in a pit 🙃 since November haven't been able to go to the shop, I manage some walks around the block and do my kettlebells in the morning. My main issue is fatigue, dizziness, dehydration (lowish sodium). I also get hypo symptoms like water retention, I'm 9 kgs overweight, my hair is
Incoguto
in
Thyroid UK
2 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
2 months ago
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Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
4 months ago
Hashimoto treatment
Hi everyone! First of all, sorry for the long post. I just got diagnosed with Hashimoto. I'm having most of hypothyroid symptoms but doctor will not give me medication as my recent blood test showed everything is still in the normal ranges. It's frustrating cause I don't know how to cope with my
Hi everyone! First of all, sorry for the long post. I just got diagnosed with Hashimoto. I'm having most of hypothyroid symptoms but doctor will not give me medication as my recent blood test showed everything is still in the normal ranges. It's frustrating cause I don't know how to cope with my
Littlemitten
in
Thyroid UK
4 months ago
Endocrinologist wants me to taper faster
Hi everyone, I just had my first appointment with an endo, and she agrees with my two rheumies in that I do *not* have PMR. When I described my intermittent muscle aches and tenderness to her (thighs and shoulders), she insisted this was the result of being on pred for so long. She said it was steroid
Hi everyone, I just had my first appointment with an endo, and she agrees with my two rheumies in that I do *not* have PMR. When I described my intermittent muscle aches and tenderness to her (thighs and shoulders), she insisted this was the result of being on pred for so long. She said it was steroid
sferios
in
PMRGCAuk
5 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
5 months ago
symptomatic bm’s
Hi, I was diagnosed with secondary hypoadrenalism in 2018 by an endo. The ACTH was borderline and there was a flat response to the glucagon test. In the same year I paid for a saliva test which showed the level of cortisol to be ok. So I only have to take oral hydrocortisone if I’m having surgery, in
Hi, I was diagnosed with secondary hypoadrenalism in 2018 by an endo. The ACTH was borderline and there was a flat response to the glucagon test. In the same year I paid for a saliva test which showed the level of cortisol to be ok. So I only have to take oral hydrocortisone if I’m having surgery, in
19aglow49
in
Thyroid UK
6 months ago
Low Estradiol and low Iron - is it Thyroid?
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Incoguto
in
Thyroid UK
6 months ago
please help . Severe extreme weight gain fat on legs since t3
please I read 2 other ladies had this I have had this and it’s now beyond comprehension This is what I find is t3 is metabolically better than before could my body be compensating with extreme fat storage . Makes no sense My face has completely changed shape to round and puffy too ACTH was on
please I read 2 other ladies had this I have had this and it’s now beyond comprehension This is what I find is t3 is metabolically better than before could my body be compensating with extreme fat storage . Makes no sense My face has completely changed shape to round and puffy too ACTH was on
Chouchou1234
in
Thyroid UK
7 months ago
Cortisol testing
Morning team :) I have very low cortisol. Had the saliva test last year and the 9am blood test. Wondering this year which is the best all round test to do. Is the urine test the most accurate in peoples opinions and experiences? I have according to Medichecks, adrenal gland dysfunction. I have had
Morning team :) I have very low cortisol. Had the saliva test last year and the 9am blood test. Wondering this year which is the best all round test to do. Is the urine test the most accurate in peoples opinions and experiences? I have according to Medichecks, adrenal gland dysfunction. I have had
smilingjane
in
Thyroid UK
7 months ago
Breathlessness when walking up slight gradients/stairs
Further to my previous post about breathlessness, I finally had an audience with the Pope, masquerading as my GP (my he's aged a lot since the last time I saw him - mind you, haven't we all. My goal was to get a Acth test arranged, as I'm convinced my problem is adrenal related and I'm concerned about
Further to my previous post about breathlessness, I finally had an audience with the Pope, masquerading as my GP (my he's aged a lot since the last time I saw him - mind you, haven't we all. My goal was to get a Acth test arranged, as I'm convinced my problem is adrenal related and I'm concerned about
Flivoless
in
PMRGCAuk
7 months ago
Ranges
Sorry did not put ranges for results: T3 4.6 (3.1 - 6.8) Anti thyroid peroxidase ab <9 iu/mL (<34) Plasma ACTH 16 ng/L (no range given) Renin 11.12 uIU/mL (no range given) Synacthen Basal Level after 30 mins 483 nmol/L (> 450)
Sorry did not put ranges for results: T3 4.6 (3.1 - 6.8) Anti thyroid peroxidase ab <9 iu/mL (<34) Plasma ACTH 16 ng/L (no range given) Renin 11.12 uIU/mL (no range given) Synacthen Basal Level after 30 mins 483 nmol/L (> 450)
jenny876
in
Thyroid UK
8 months ago
thyroid results
Hi, i had hyperthyroidism in July 2019 and since then ahve been suffering with palpitations and shortness of breath. I also have fatigue, dark shadows under my eyes and joint pain though I suffer with chronic fatigue and fibromyalgia. I have been seeing an endocrinologist for a few years and they say
Hi, i had hyperthyroidism in July 2019 and since then ahve been suffering with palpitations and shortness of breath. I also have fatigue, dark shadows under my eyes and joint pain though I suffer with chronic fatigue and fibromyalgia. I have been seeing an endocrinologist for a few years and they say
jenny876
in
Thyroid UK
8 months ago
Synacthen Test Results
Hi everyone, just looking for some clarification on a Synacthen test I've had. Bit of background, 36M, pretty healthy in terms of diet, exercise, sleep etc. No medications. I've been suffering for a few months with fatigue, heart palpitations. Seems to get a lot worse after exercise. Checked cortisol
Hi everyone, just looking for some clarification on a Synacthen test I've had. Bit of background, 36M, pretty healthy in terms of diet, exercise, sleep etc. No medications. I've been suffering for a few months with fatigue, heart palpitations. Seems to get a lot worse after exercise. Checked cortisol
Lalalala5
in
Thyroid UK
8 months ago
Secondary adrenal insufficiency after immunotherapy
First of all, I am so happy to have found this forum! I`ve been searching for the last two months for an active forum where I could find somebody like me, with secondary adrenal insufficiency. Last summer I was diagnosed with Triple Negative breast cancer stage 2(no limph node involvement). I begun
First of all, I am so happy to have found this forum! I`ve been searching for the last two months for an active forum where I could find somebody like me, with secondary adrenal insufficiency. Last summer I was diagnosed with Triple Negative breast cancer stage 2(no limph node involvement). I begun
Outandabout-1
in
Thyroid UK
8 months ago
How long did it take for your ACTH to come back?
Hi everyone, Hope your all safe and well. So i am currently taking 15mg of hydrocortisone a day. I was diagnosed with secondary adrenal insufficiency after i had adrenal crisis last year. It has been about 14months now and a recent synactican test shows my cortisol level at 0mins at 70 and only rises
Hi everyone, Hope your all safe and well. So i am currently taking 15mg of hydrocortisone a day. I was diagnosed with secondary adrenal insufficiency after i had adrenal crisis last year. It has been about 14months now and a recent synactican test shows my cortisol level at 0mins at 70 and only rises
Saffron2022
in
PMRGCAuk
8 months ago
ACTH Levels
Hello, All! Does any of our group have high/low/regular levels? If so, what are you taking or not taking and, most importantly, how do you feel, energy level etc? Last one I had was at 151-don't take anything, good energy..
Hello, All! Does any of our group have high/low/regular levels? If so, what are you taking or not taking and, most importantly, how do you feel, energy level etc? Last one I had was at 151-don't take anything, good energy..
3WheelWonder
in
AMN EASIER
9 months ago
goserelin and ACTH
I am wondering how and if GnRH medications like Zoladex impact the ACTH production and if the activity of the adrenal production of adrenal androgens feeds the prostate cancer cells independently of the LH / testosterone route. Also as cortisol is increased with various other physical and psychological
I am wondering how and if GnRH medications like Zoladex impact the ACTH production and if the activity of the adrenal production of adrenal androgens feeds the prostate cancer cells independently of the LH / testosterone route. Also as cortisol is increased with various other physical and psychological
SimMartin
in
Prostate Cancer Network
10 months ago
Thyroid and cortisol results
Hi all, just got results back from latest NHS bloods. Any thoughts? This was primarily to try and 'verify' my private blood test results showing above-range TSH (6.1) and high antibodies. Test was done just before 9am, fasting, currently not on any meds, no biotin week before. I also asked for serum
Hi all, just got results back from latest NHS bloods. Any thoughts? This was primarily to try and 'verify' my private blood test results showing above-range TSH (6.1) and high antibodies. Test was done just before 9am, fasting, currently not on any meds, no biotin week before. I also asked for serum
seveneleven
in
Thyroid UK
11 months ago
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