Experiences with Acthar | HealthUnlocked

242 public posts

Persistent low level headache and dizziness since moving from oral MTX to injections . . . or just me being odd?

A little bit of background first. I'm relatively new to my RA diagnosis (although not RA I fear!) - November 2018. I have sero-negative RA. I've been under the Respiratory team for years with Inflammatory Asthma and have had bibasal bronchiecstasis diagnosed very recently after a CT scan in the summerA little bit of background first. I'm relatively new to my RA diagnosis (although not RA I fear!) - November 2018. I have sero-negative RA. I've been under the Respiratory team for years with Inflammatory Asthma and have had bibasal bronchiecstasis diagnosed very recently after a CT scan in the summer

jbzmin NRAS

ACTH levels getting higher

I've been back in the states for a couple of weeks now. I just got my blood work results back and my ACTH levels are up to 310. 6 months ago they were 214 My morning cortisol was 21.2 to (a little high) the high range was 19 I've been to 2 endocrinologist in the past and the have no answer for me, thisI've been back in the states for a couple of weeks now. I just got my blood work results back and my ACTH levels are up to 310. 6 months ago they were 214 My morning cortisol was 21.2 to (a little high) the high range was 19 I've been to 2 endocrinologist in the past and the have no answer for me, this

deengoin AMN EASIER

Just had some results back and would like some advice please

Hi all, I saw my NHS endocrinologist on Dec 9, she ordered blood tests to check my TF as I told her I was self medicating. I was also booked in for an SST and ACTH to check on my adrenal function, due to my Addisons and because I was supposed to be having a consultation with my private endocrinologistHi all, I saw my NHS endocrinologist on Dec 9, she ordered blood tests to check my TF as I told her I was self medicating. I was also booked in for an SST and ACTH to check on my adrenal function, due to my Addisons and because I was supposed to be having a consultation with my private endocrinologist

LuluCopsin Bladder Health UK

Just had some results back and would like some advice please

LuluCopsin Thyroid UK

Results are in - T3/T4. Does anyone know what the lower ranges for serum ACTH and DHEA are? My area uses 0 so I’m ‘normal’ apparently

Hi lovely people. After my dire saliva cortisol results, my private endo requested some blood tests. But they look like they are pretty much normal? The only thing is, the ranges for ACTH and DHEA start at zero, which I thought was weird. Also, I wouldn’t have tested my TSH, FT3 and FT4 yet as I’ve beenHi lovely people. After my dire saliva cortisol results, my private endo requested some blood tests. But they look like they are pretty much normal? The only thing is, the ranges for ACTH and DHEA start at zero, which I thought was weird. Also, I wouldn’t have tested my TSH, FT3 and FT4 yet as I’ve been

suztangoin Thyroid UK

Blood tests after a trial of Levothyroxine

Hello all, 8 weeks ago I started taking 25mcg of Levothyroxine, TEVA brand. (I am already ACTH deficient and taking hydrocortisone x3 daily and now endo suspects I am becoming TSH deficient - T4 level has been steadily declining, and increasingly symptomatic of hypo). Blood results before the trialHello all, 8 weeks ago I started taking 25mcg of Levothyroxine, TEVA brand. (I am already ACTH deficient and taking hydrocortisone x3 daily and now endo suspects I am becoming TSH deficient - T4 level has been steadily declining, and increasingly symptomatic of hypo). Blood results before the trial

luckyedin Thyroid UK

Another puzzle - Addison’s?

Hi I’m hoping someone might be able to help me as I’m really struggling. Apologies for posting this here as I don’t suffer with thyroid issues, but a lot of posts about Addison’s have popped up here so I’m hoping someone may be able to help. I’ve been struggling for a few weeks now when I startedHi I’m hoping someone might be able to help me as I’m really struggling. Apologies for posting this here as I don’t suffer with thyroid issues, but a lot of posts about Addison’s have popped up here so I’m hoping someone may be able to help. I’ve been struggling for a few weeks now when I started

CharlieRNin Thyroid UK

New Results, Need Advice Please.

Hi all, These are my results taken November 2019. Presently taking T4 100mcg + 10mcg T3, all taken & 6a.m. Tsh: 0.02 (0.32-4.00). FT4: 11 (9-19). Ft3: 3.5 (2.6-5.8) all nutrients all optimal and I’m on maintenance doses. Endo reluctantly agreed to increase but tells me to increase T4 and to decreaseHi all, These are my results taken November 2019. Presently taking T4 100mcg + 10mcg T3, all taken & 6a.m. Tsh: 0.02 (0.32-4.00). FT4: 11 (9-19). Ft3: 3.5 (2.6-5.8) all nutrients all optimal and I’m on maintenance doses. Endo reluctantly agreed to increase but tells me to increase T4 and to decrease

Rosebud1955in Thyroid UK

Early Hypo/Hashi's Complicated By Adrenal/Low Cortisol

Greetings everyone: Finally got fed up with my family doctor who knows nothing and went two routes - endocrinologist (my doctor reluctantly gave a referral) and naturopath. Symptoms I have just about every symptom of hypothyroidism I have ever read and I am confirmed Hashi's by antibodies and ultrasoundGreetings everyone: Finally got fed up with my family doctor who knows nothing and went two routes - endocrinologist (my doctor reluctantly gave a referral) and naturopath. Symptoms I have just about every symptom of hypothyroidism I have ever read and I am confirmed Hashi's by antibodies and ultrasound

ASkepticalConsumerin Thyroid UK

TEVA brand causing anxiety??

Hello all, 3 weeks ago I started taking 25mcg of Levothyroxine, TEVA brand. (I am already ACTH deficient and taking HC x3 daily and now endo suspects I am becoming TSH deficient - T4 level has been steadily declining, and increasingly symptomatic of hypo). I have read people saying that they reallyHello all, 3 weeks ago I started taking 25mcg of Levothyroxine, TEVA brand. (I am already ACTH deficient and taking HC x3 daily and now endo suspects I am becoming TSH deficient - T4 level has been steadily declining, and increasingly symptomatic of hypo). I have read people saying that they really

luckyedin Thyroid UK

Low cortisol/adrenal insufficiency

Hi all I've had my cortisol tested due to being chronically fatigued and only 19 and it has came back low, saliva and blood test I am waiting on another blood test but by the doctors, this ones not private. Anyway my main point is on a Adrenal Facebook page I'm in they only take hydrocortisone and notHi all I've had my cortisol tested due to being chronically fatigued and only 19 and it has came back low, saliva and blood test I am waiting on another blood test but by the doctors, this ones not private. Anyway my main point is on a Adrenal Facebook page I'm in they only take hydrocortisone and not

75458854in Thyroid UK

Cortisol Tests

HI Cortisol Blood Test taken 6 weeks ago at 9.00 am by GP was 182 nmol/L. The same again this week at 9.00 am by GP was 268 nmol/L I believe the next step will be for an ACTH but waiting to speak with my GP. Should I be concerned about these low results? Do you think there is any relevance in theHI Cortisol Blood Test taken 6 weeks ago at 9.00 am by GP was 182 nmol/L. The same again this week at 9.00 am by GP was 268 nmol/L I believe the next step will be for an ACTH but waiting to speak with my GP. Should I be concerned about these low results? Do you think there is any relevance in the

Hiddenin Thyroid UK

Levothyroxine with Hydrocortisone

Hello all, I hoping someone has experience of taking these 2 together! I have just this morning starting a trial of Levothyroxine, prescribed by my endocrinologist. I am ACTH deficient (secondary Addison's Disease), so take Hydrocortisone as replacement therapy x3daily, and have done for 8 years now.Hello all, I hoping someone has experience of taking these 2 together! I have just this morning starting a trial of Levothyroxine, prescribed by my endocrinologist. I am ACTH deficient (secondary Addison's Disease), so take Hydrocortisone as replacement therapy x3daily, and have done for 8 years now.

luckyedin Thyroid UK

Further tests

Hello, I am in the process of having further tests, one of which is for low cortisol and so an ACTH test is scheduled? Is it common for such a test to be given at a GP practice as I thought this was done by the endocrinologist? Or perhaps this test is done locally for then referral (if necessary)?Hello, I am in the process of having further tests, one of which is for low cortisol and so an ACTH test is scheduled? Is it common for such a test to be given at a GP practice as I thought this was done by the endocrinologist? Or perhaps this test is done locally for then referral (if necessary)?

Hiddenin Thyroid UK