Experiences with

Acthar

Hello, I was hoping someone could look at my son’s labs and give me their thoughts please. He’s been having vague mysterious symptoms over the last 4 months and we are searching for answers. He’s been very tired, pale, anxious, emotional, stomach issues, flushing, etc. He has had many blood tests and

hello everyone, I made a post two days ago about my cortisol am levels. I wanted to ask your opinion on the fact that my Dr wants me to get an ACTH stimulation test done. I’m not sure if this is necessary? Since my levels are within range Levels 207 reference range 101-535

[40y/o male, UK, family man, previously fit] Hi all, I hope you're doing well. I'm new to the forum so this is my introduction I suppose... So... Hi! if I make any mistakes don't be afraid to correct me. Long story short; I've been suffering a wide range of symptoms for years and have seen several

"Abstract Background Irritable bowel syndrome (IBS), the most common functional gastrointestinal disorder, is characterized by chronic abdominal pain and bowel habit changes. Although diverse complicated etiologies are involved in its pathogenesis, a dysregulated gut–brain axis may be an important factor

Hi everyone, I will start with Vitamin D. In May/2024 my level was 37 and i been taking vitamin D 800ui from Holland Barret and my level in August/2024 was 39 then start taking 3000ui ,,BetterYou'' spray till now by the way both those previous test was done my Blue Horizon. Then was not testing

Hi everyone, I have secondary adrenal insufficiency and hashimotos. I’m well medicated on hydrocortisone and T3 only. My new endo wants me to have another ACTH stim test done. My last one told me I only needed to stop the hydrocortisone 24 hours prior to the test but this one wants me to taper over

I'm very confused about what my next steps should be and I'd appreciate any advice. I feel very alone with this. 😪 SUMMARY: Basically, I had a pretty normal thyroid panel. I was put on thyroid meds as a trial treatment for life-altering symptoms I had at night - T4 plus a hefty dose of T3. I

Question - Is it worth me bothering with the SST considering the below info? I am thinking maybe not but as you have all been so helpful in the past I thought I'd ask for opinions please. Preface - All my core vitamins are optimal and have been for many months now. I don’t take thyroid meds, no antibodies

this is more so for the real educated low dose naltrexone folks bc it involves biochemistry. I’m a woman and every time I’ve gone on LDN now it raises my testosterone due to its effects on the HPA axis (namely acth/cortisol and therefore the downstream hormones). Has anyone else experienced the same?

Hi I'm hypothyroid, currently on 112mcg levo which hasn't really hekped, plus Pernicious Anaemia which i self inject every othrr day B12. I had a cortisol test back in mid august as I suspected cushings, it was 86nmol/L so instead very likely Addisons /AI. This was via my private endo who was about

My visit to Brightons Royal Sussex Hospital today has been exhausting but I have come away knowing the outcome of my short synacthen test and having delayed surgery on the pesky pituitary adenoma that was revealed (unexpectedly) by MRI in January. The good news is that my adrenal glands are capable

I did a Randox Female Hormone Test as NHS Endo refused to check Progesterone and Testosterone, and they don't believe in HRT. Until August 2022 I had been on HRT, Kliofem 2mg/ I mg , for more than 20 years. I was taken off it by my G.P. because of my age. I believe I have Pituitary Failure/ Central

I ran into disability and it’s getting worse already for more than 2 years, Dutch doctors keep doing nothing and pinpointing me from one to another and not run even basic tests. Not hospitalizing, not trying to help. I got so many private doctors but financially I can’t afford a lot of tests. I could

After getting down to 3 mg of prednisone (still doing Actemra injections) my endo switched me to hydrocortisone for a couple of months. I got down to two 5mg tablets in AM and one 5mg tab in PM, the PM dose kept my blood pressure from going too low. Last month my endo did ACTH testing and said my Adrenal

Hi everyone. My first post for many years so I’m now very out of date on everything as I’ve been happily ticking along for ages taking a combination of thyroxine and T3 and keeping my TSH levels quite low. I’ve recently been referred back to endo to confirm the T3 prescription and for some adrenal

Got a phone call just now from endocrinology, my cortisol test at GP' surgery was 1 56, she said that's good, it shows things are working....I am on 4.5mg......I said this must be taken into account I suppose?....she said we will get you an ACTH test done, if it's 250, that's regarded as normal. ...

Has anyone had an ACTH Stimulation test after stopping abiraterone and Prednisone to test for adrenal insufficiency? I ended 24 months of eligard, abiraterone, and Prednisone on June 4. My endocrinologist (who I had prior to prostate cancer) pushed me to have a cortisol test on June 6 even though I

This has happened a few times over the years, that I've been drinking nothing ott but 3-4 glasses of wine & suddenly out of nowhere I'm upset shouting at hubby for no apparent reason🤦 I've been very good of late not to drank too much. (Just recently back on 125mcg daily instead of eod as my moods were

Hello I wondered if anyone could help, I was referred to an endo for my thyroid as my TSH was 0.1 and ts3 was 6.4 (range 4-6) so they thought I could gave hyperthyroidism especially with my symptoms of fatigue, abdominal pain, weakness and graves in my family, etc however I did the tests and my TSH have

I was asked by the GP to remind him, when I reached 3mg in my tapering, that I should have a synacthen test. I have now done so. However, I am being sent for an ACTH blood test Is this the same thing (I don't think so as I have not been asked to miss the steroid dose and there is no indication that