Experiences with

Acthar

Can anyone tell me how this has worked for them? Thanks Peggy

Anyone ever took these injections before and if so how did you do with them? Did they help? I just got put on them after I had a video appt with my RA doctor. My sed rate is very high and he also had previously put me on imuran. So just wondering how things went for any of you that may have taken it

Still waiting for insurance approval for acthar gel injections. Never been on that before it’s supposed to help with pain and inflammation. And hopefully help get me off of steroids as I am now diabetic because of the steroids.

How did everyone manage the prednisone free time? What dose were you on at the time. My consult with a endocrinologist was due to low blood sugar readings. He was concerned that my adrenals would not wake up . I and my sister always tended to low blood sugars- helped with between meal snacks. Also how

Hello everyone The clinic only opens at 1.30pm so 1.45 it is. Also no way to ask for the test draw prior to injection. Not much more I can do, just hope the test will be good enough. Thank you all for your replies :) I was under the impression that the SST test needed to be done early morning and

I recently had a SST due to low cortisol. The endo said my results were good and discharged me without discussing them with me. I wrote to him to ask for ACTH blood test because they didnt test this when i had my SST but he has refused. See attached letter. I really don’t understand this response particularly

Hi, I saw my new pituitary specialist on Friday who surprisingly offered me a Short Synathcen Test for suspected low cortisol. I had a cortisol test recently and it was normal. I have just realised that fasting for the test was not recommended, and I had had no coffee or food overnight. Before my

hi, i have another long winded post! :) the questions are also repeated in the post! questions (so you don’t have to read this whole thing if you don’t want ;)): -if my RLS is secondary, would i benefit from using a dopamine agonist? and if i were to take an SSRI or something like buspar, would i be

Why is synthetic ACTH not used to trigger the adrenal glands into reawakening after a long suppression due to steroid treatment in GCA . At levels of around 4 mg when there is resistance experienced in normal functioning of the adrenals , would not synthetic ACTH stimulate the adrenals ? Does anyone

I’m taking a 5 day course of Acthar Gel injection at home advised by my Neuro and on 4th day. It’s helping reduce inflammation, but sometimes I feel like I’m dying due to weakness when I walk around. I have been lying down mostly for 7 days. It sucks!

Recent test results. T4 15.8 pmol/L (11-22) T3 7.9 pmol/L 3.1-6.8) TSH <0.01 miu/L (0.49-5.23) TPO 187.6 U/Lml (0-59.0) Thyroid autoantibodies <1.10 UL (0-1.8) Plasma ACTH not done as cortisol in range (wasted trip to hospital) Serum Cortisol 263 (166-507) So I have hasimotos, that I didn't realise

Can anyone tell me if I should stop my T3 24 hours before this test.. Thanks everyone ❤️❤️❤️

I have adrenal fatigue. Low low low high. I’m taking hydrocortisone but wondering when I should be taking it as I don’t want to completely shut down my ACTH if that’s possible. Is HC addictive and how long could I be on it or until I can come off of it normally?

Hi everyone, I'm new to this forum and wanted to ask some questions since I can't get into a specialist for another month and a half. Ok so 5 months ago i noticed I had lines going across my fingernails so I thought maybe it was a vitamin deficiency or something so I looked it up on good ole google,

Hi all - I just wrote an absolute essay in response to a question about adrenal insufficiency from steroids. Since this is a question that may crop up periodically (I know I've answered it before), I thought I would copy it here for general information, and to link to in other posts if anyone wants

Hello all, I posted my blood tests results a couple of weeks ago: FT3: 4.2 (range 3.5-6.5) (pre Levo level 3.9) FT4: 15 (range 11.5-22.7) (pre Levo level 10.8) TSH: 0.25 (0.55-4.78) (pre Levo level 0.34, but I am TSH deficient because of pituitary issues - also adrenal insufficient because of ACTH

Greetings dear folks on this board. Hope you and your families remain well. I have posted a couple of times before and have appreciated the responses. I am not medicated for thyroid or anything. Symptoms - almost body shaking, feel loud heart beat, exhaustion and fatigue most in morning but all day

I have all the main hypothyroid symptoms right down to having lost the outer 1/3 of my eyebrows, weight gain, edema, internal shaking and feeling heart is fast, digestive issues and almost constant diarrhea, dry flaky skin, thin skin, gum issues (dentist says thyroid), sore knee joints, muscle cramps

Daleboy Today, 09:56 PM This is a long shot but im desperate. Im a 37 year old male who suffered from acute asthma as a young child. For approx 2 years (ages 4-6) i was injected with weekly doses of 'Synacthen' and then inhaled steriods there after. My growth was suppressed and am still small now.

Hi Guys new here ( kinda ). I have had hashimotos for 10 years that I know of. Im not on meds yet because my labs are always "normal". I have went a little hypo and hyper once or twice but that about it. Meanwhile, I am sooo fatigued and have heart palpitations. I also developed SVT which I had an ablation