I have WG and have suffered from bad, virtually constant, headaches for the last 18 months. I have seen a Consultant Neurologist who gave my GP a list of 3 drugs. I got to the 3rd one and experienced some relief - maybe 80%. Subsequently, this drug was 'withdrawn' as it was thought to be the cause of nausea I have been suffering. It wasn't - but it was, I am told, expensive!
My GP has now referred me to the Pain Clinic ..... I received my 'Choose and Book' paperwork and phoned accordingly. They couldn't offer me an appointment!! Eventually, on Saturday morning I received a letter from the hospital offering me an appointment on December 14th - 4 months away!!
Any suggestions? To say I am distraught is an understatement.