I'm currently waiting on a diagnosis and vasculitis was the only thing my doctor suggested I may have, although she did test my bloodwork for a bunch of different things.
Basically this all started last week when I went to the optometrist and found out I have a hemorrhage in my left eye near my blind spot. He suggested I make an appointment with my doctor to determine if there was any underlying medical cause for this to have happened. She said it could be vasculitis and ordered bloodwork. I'm still waiting on the results.
However, at the time of my appointment I had never heard about vasculitis and had no idea what it was. When I went home, I looked it up online and realized that I actually have petechiae all over my arms, and some spots on my torso, legs, and face. I've had these spots for a few years now, but I didn't think of it as anything more than just the way my skin is. I'm now learning that it's actually bleeding/hemorrhaging under the skin..?
Also in the past 2 months I've had a very intense heart beat sound in my right ear. It gets louder and quieter for no apparent reason. I'm learning through my research that this could possibly be a vascular issue as well?
Headaches are a constant thing as well. Just last night I fell asleep with a headache and when I woke up, it was even worse. I haven't had a fever that I'm aware of.
Basically I just wanted to reach out to this group to see if anyone has had similar symptoms as me. I really don't know if my symptoms sound like vasculitis at all. Also, the only symptom my doctor is aware of right now is the retinal hemorrhage (because at the appointment, I didn't realize I had other symptoms until I researched vasculitis).
Does this sound like vasculitis to you? It's so hard waiting for the blood work results and I have no idea when I'll get them. I'm worrying myself sick.