I was hoping someone will be able to help me. I have Hypocomplementemic Urticarial Vasculitis Syndrome. I had a reaction on Tuesday night and was rushed in to A&E with my usual symptons of swelling and tremors.
This time I experienced a different reaction too. My legs felt too heavy to move, in fact I had to move them with my hands, a bit like an epidural type feeling. Apparently a few hours before the attack my eyes were tremoring too. Though I was totally unaware of this at the time.
The good news is that I was only admitted overnight, given steroids and further anti histamines intravenously 3 times, and continue to manage things at home as per usual.
We also believe that blood pressure is intermittently dropping. Enough to require assistance and extra meds. Is this from the swelling from the blood vessels??? I've had 3 episodes in the past 10 days where I needed help to stop blacking out.
I am used to reactions as have been ambulanced in between 15-20 times over the past 18 months.
Any advice or suggestions would be really appreciated.
Just to note I am currently tapering down cellcept (from 2000mg per day -0mg) for Rutiximab treatment in 10 days time but also on
40 mg preds, 540 mg Fexofenadine, 10 mg Ivabravadine, 10 mg Singulair, 15 mg Lansoprazole, 24 mg Piriton, Adcal-3, 5mg Diazepam, Alendronic Acid (once per week). As you can see quite a mix.
Thanks in advance