Primary cerebral vasculitis

[beeryone]

I had the worst  5 month all my life.be on a life support mchine. They was going to switch mechine off.as I lost all movement from neck down.Just started to walk again.on 10 mg prednisolone of day.Just had Mir scan was clear. But still very dizzy  and wired. Back in bed again.what can I do.

[Suzym2u Moderator Vasculitis UK]

So sorry to hear this. Which hospital are you seen? Do you take any other medication besides the prednisolone. Have you read the page on the VUK website about Cerebral Vasculitis? 

[beeryone in reply to Suzym2u]

Deriford. Plymouth.my other meds levothyroxine 125 mg. Kappa 500 mg.amlodipine 5mg.omeprrazole 40 mg. Risedronate e5mg once a week. Axial Dr 2 tablets daily.

[beeryone in reply to Suzym2u]

Plymouth. Deriford hosp.levothyroxine 125 mg Daly. Kappa 500 mg Daly.amlodipne 5mg.omeprrazole 40 mg aday.risedronate 5mg one a week.Adcal 2 aday.prednisolone 10mg aday

[Patricia2015]

So sorry for your horrendous hospital adventure but so happy you are doing better now! Keep strong warrior!

[beeryone]

Thank you.Patricia. I will get through  this. I got great friends and family. had mri scan Saturday. Just waiting for resuts

[Suzym2u Moderator Vasculitis UK in reply to beeryone]

Please let us us know your results and how things go fo you. Hope they are looking after you well? Cerebral Vasculitis is so very rare. This is the page I mentioned earlier from the website. vasculitis.org.uk/about-vas...