I have been living in extreme agony the likes of I cannot articulate, in my left buttock, groin and leg. The hernia at L4 & L5 is pressing upon the nerves and is causing me to not even be able to stand for longer that a minute and I get problems going up and down stairs and so much more. I have been swallowing painkillers and muscle relaxants like sweets . Crohn's, GPA, disc degeneration and herniated discs pressing upon the main nerves into my left lower side
I was told I'd have surgery but when I went for pre op assessment the anaesthetist said he would not be prepared to do the surgery due to the vasculitis. I am at my wits end as they habe had me travelling to the private Circle hospital in Bath.
At my last consultation they anaesthetist said he would not be prepared to take the risk but the surgeon came in and said he'd arrange a new MRI on Jan 5th and if the hernias are the same or worse then he would operate.
This has now been all mixed up through lack of communication between rheumatology and surgeon. The rheumatology department want to start cyclophosphamide ASAP but I habe asked them to wait as the pain I am in is so bad that I have considered ending myself. My quality of life is so poor that it's just driving me down and it's a never ending spiral of me taking more pills to numb myself jjsy to be able to get by. I really habe never ever been this low and don't know what I can even do. No one seems to be talking to the others involved.
I got a secretary from the private hospital call today and say that my GP should habe had a letter informing him that I won't have surgery there and that I need re referring to my local hospital. I honestly can't take anymore of this. I can't even properly explain the pain. I will have a go. My buttock, groin and hip feel red hot pins and needles always plus the hip feels like I am being hit with an hammer persistently. My hamstring feels like,it's being pulled through my foot and it's twisted my left foot inwards. I then have spasms that have me yelping like a dog and I am basically housebound.
I am booked to habe the new MRI at this hospital Jan 5th but why bother if they will not operate
Also, I've delayed cyclophosphamide because the leg pain is the biggest thing in my life right now I wish I'd never mentioned the damned vasculitis
I am asking for ANY constructive advice I really am at my wits end guys when your quality of life means that even answering the door puts me into spasms of agony and waves of evenly pain then I don't know what I can do
It doesn't help that neither department is communicating with the other
If anyone can help then please do I am sorry but I can't take much more chin up and carry on just aren't doing it and although well intentioned, they are platitudes we ALL use at times, I know I have
I can't see myself being able to carry on with such pain levels for much longer I really am done if I habe to be re referred then it will mean going through the entire process again and probably 4-6 months of more agony and me turning into a hopeless opioids and benzodiazepine addict as they are the only thing that keep me here
So sorry for the long post but I am desperate