New Alliance for Rare Autoimmune Rheumatic Diseases

[Suzym2u]

New Alliance for Rare Autoimmune Rheumatic Diseases ! British Society of Rheumatology, Vasculitis UK , Lupus UK and Scleroderma/Raynauds UK. Please follow this link for more details

vasculitis.org.uk/news/alli...

[AndrewT]

Dear Susan,

An 'interesting' collaboration, let us all hope that it achieves 'Great Things'. Is John involved? Or is it 'just' yourself (please don't take the 'Just' the wrong way)? Can you keep us all 'posted' please?

Sorry that this is in the second paragraph but....How are you and John? Well I hope. How is, is it, Jann-does this name 'ring a bell'? Could be Hann or Lann? He, I'm pretty sure it was a He, 'Posted' regarding Vasculitis UK I think-or am TOTALLY wrong! If you do know, who I'm talking about, please can you 'pass on' my best wishes please. Sorry to be so Vague!

Anyway, back on 'firmer Ground', please give John my Kindest regards.

Many thanks AndrewT

[Suzym2u Moderator Vasculitis UK in reply to AndrewT]

Not quite sure Andrew there is a Jann who is a trustee of VUK. John is most certainly involved Andrew, as Chairman of Vasculitus UK , not me, I just run around like a headless chicken trying to keep on top of things 😳

[AndrewT in reply to Suzym2u]

Dear Susan,

Sorry that I'm late replying, smacked wrist, but I've been away. I think that I am probably thinking of Jann, the Trustee. I hardly think, that you, 'Run around like a headless Chicken' Susan-what you DO DO is work VERY hard, to keep us all informed. I can tell that, for that, we are ALL very grateful. As regards 'keeping on top of things', see above!

Thank you for 'Tracking Down/Locating' Jann, for me.

Kindest wishes, keep up the good work!

AndrewT

[skybluepink]

Do not have diagnosis yet possibly due to fact the testing microscopes not equating with operational ones e.g.: When had MI 10 yrs ago had an angioplasty to revive but angina stable/unstable not showing up on HOSPITAL TESTS only PAH which should have been seen on operational one only showed itself on Reveal Device not revealing comotosing after ingestion daily ,This has been so with uti infections & sepsis /haematuria left in limbo due to remits ??!!Now No Testing directives for over 60s in Primary Care & No Referrals after cutting their Treatment in hospitals with antibiotics?.This happens every Cut back could be fatal . How unreasonable & undemocratic can a Government get?