New Rare Diseases Strategy to help millions ... - Vasculitis UK

Vasculitis UK

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New Rare Diseases Strategy to help millions launch today

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John_MillsVolunteer
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A new UK strategy to help improve the diagnosis, research and treatment of rare diseases is expected to be launched by the Government today.

It is estimated that around 3.5 million people in the UK will be affected by a rare disease at some point in their lives.

news.sky.com/story/1172103/...

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John_Mills
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6 Replies
John_Mills profile image
John_MillsVolunteer

some more information is now available pharmatimes.com/Article/13-...

cedric profile image
cedric in reply to John_Mills

about time very good news

HiveMind profile image
HiveMind

Fantastic!

John_Mills profile image
John_MillsVolunteer

Another update ! pharmatimes.com/Article/13-...

PatriciaAnn profile image
PatriciaAnn

You can read the key points and link to the government strategy document at: vasculitis.org.uk/news/rare...

PatriciaAnn

AndrewT profile image
AndrewT

About time too- carry on, at this rate, and maybe some of these diseases may not be too 'rare' any more! Watch this space, so to speak!

I confess that I haven't read all the 'links' referred to here- the usual excuse, I'm afraid, too much else to do! I will try to keep 'up to date', as far as I can, promise!

Hope everyone is keeping 'well' (ok you can all stop laughing now, sorry!!)

Kind regards

AndrewT

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