Hi fellow sufferers and care givers,
You are probably like me in that you rarely drink now you have been diagnosed with vasculitis and are on harsh meds. I have generalised small cell & ANCA + vasculitis that is most likely Wegeners / GPA
I have inflammatory vowel disease so this is a bit complicated. I have had blood be coughed up due to the lungs being inflamed but it clears within 2-3 days of me having one of the episodes of rigor. I went out and on two occasions have allowed myself 3-4 pints. I first felt like I had the worst reflux pain ever but this was way worse and I had already taken my pantoprazole. I had to come home and on both occasions the top of my belly has been rock hard and looked very bloated. I habe had dark blood be coughed up at a week after this time and I have such an awful and bitter taste too.
I have emailed my GP and he is sorting an endoscopy. I am having bloods done today and a stool sample taken. My GP says it's unlikely to be liver but I knkw azathioprine is hard on the liver. This is really dark and very thick. I am not sure if it is from my stomach or lungs but I have had rattling in lungs too.
Has anyone else experienced this please and any advice would be greatly appreciated.
I am not in pain now but this dark blood is very worrying.
Thanks in advance