Hello, I am a 25 year old male, and my GP has recently referred me to a vasculitis specialist at UCLA. From what I have read, vasculitis of the GI tract is very rare. However, I believe that there is a possibility that I could have it. I have had terrible GI problems all the way from my colon up to my esophagus for over 5 months now. My symptoms include weight loss, weakness/pain that comes and goes throughout my body, moderate abdominal pain, swollen fingertips, ulcerative colitis, 3 stomach ulcers, esophagitis, pulsating/throbbing in my ears and sinsuses, headaches in the back of my head, recently had a small purplish rash on my arm that went away, and i experience muscle twitching.
My question is; how rare is vasculitis of the GI tract? I've also read that it usually has a high mortality rate. Is there anybody on here that has GI issues from their vasculitis? I am just worried and I do not see the vasculitis specialist until Aug 19. Thank you in advance.