Last year I developed a burning painful rash of red spots on both legs, feet and arms. I have SLE, Sjogrens, Raynauds and APS so thought it must be connected with one of those. Rash lasted 7 weeks but as it took 7 months to get an urgent appointment at St Thomas the rash had gone. But on the evidence of photos I took and history, both rheumatologist and dermatologist have given a diagnosis of vasculitis unspecified and told me I need an urgent biopsy if/when rash comes back.
That's fine, but past 3 months I've been feeling much worse. Main problem is extreme fatigue, worse than a lupus flare and early morning nausea and weakness in spite of taking anti-emetics all the time. My lower legs burn and are very painful only relieved by painkillers and a warm bath and elastic stockings. Because I am feeling generally ill most of the time and particularly early morning I'm getting a bit concerned and wondered if this sounded familiar to anyone and if so do you think I should be pursuing this with my GP now ? Apologies if this sounds wimpy but I hate going to GP especially as he is reluctant to treat because of attendance at St thomas Hospital and by his own admission he knows nothing about vasculitis ( just a thought, but if I were a GP with a patient who had vasculitis I'd make it my business to find out about it) I am back at St Thoms in April.
I'd be grateful for any advice, thanks