Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

544 members • 244 posts

All posts for October 2020

Q. about weird freckle pattern

Hi. About 5 or 6 years ago my house-mate and I got a cat. Around about the same ...
Penwiggle profile image
Penwiggle
•
1 Reply

Ketotifen Elixir (liquid) is available again (as are tablets)

Good news medication update! Zaditen (ketotifen) elixir is back in stock. Your p...
Jess-UKMasto profile image

What is everyone day to day life like can u work or you of work unwell?

I guess just trying find out how everyone else life has been affected by mcas . ...
Merkat90 profile image
Merkat90
•
4 Replies
Want to take advantage of all our features? Just log in!
or

Can u increase the dose of ketotifen?

Currently on 1mg of ketotifen capsules. Can this be upped to higher dose? It hel...
Merkat90 profile image
Merkat90
•
9 Replies

Does the NHS (UK) prescribe antihistamine nasal sprays?

Hi, I recently had cause to try and get an antihistamine nasal spray from one of...
Chancery profile image
Chancery
•
2 Replies

International Mastocytosis and Mast Cell Diseases Awareness Day!

Yesterday was the 3rd annual International Mastocytosis and Mast Cell Diseases A...
Jess-UKMasto profile image

What do you wish people knew about your mast cell disease?

Our friends at Mastocytosis Society of Canada shared this yesterday on Twitter, ...
Jess-UKMasto profile image
Jess-UKMasto
Partner•
1 Reply

Night time hell ...

Hello hope today is better day . I joined this forum to ask few questions reall...
Merkat90 profile image
Merkat90
•
8 Replies

Hi. First post, think I have MCAS, feeling overwhelmed

Hi everyone, Brief backstory. (OK, turned out to not be that brief, sorry) I'm ...
Penwiggle profile image
Penwiggle
•
5 Replies

Nalcrom available to be imported

Good news on the Nalcrom front!! I have just heard from the DHSC that at least t...
Jess-UKMasto profile image

Have there been any studies in to tryptase level increases over the lifetime of patients?

Should patients expect their levels to increase X percentage per year?
MastoMan profile image
MastoMan
•
3 Replies

Suspect mast cell disorder - who to ask my GP to refer to?

Hi everyone, I joined health unlocked initially to discuss my recent vitamin B12...
Hebe2020 profile image
Hebe2020
•
2 Replies

Nalcrom Update

We have been told by Sanofi that Nalcrom will be out of stock until the week com...
Jess-UKMasto profile image

    Search posts

    Pinned Posts

    See all
    profile image
    The UK Mastocytosis Support Group Community Guidelines
    profile image
    Introduce Yourself!

    Latest poll

    See all polls
    Poll icon

    Which Adrenaline Auto-Injector (AAI) do you prefer?

    Vote

    Topics

    All posts(27)
    MCAS(8)
    Mastocytosis(4)
    Systemic Masto(4)
    COVID-19(3)
    Mast cells(3)
    See all topics

    Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

    Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

    Archive

    2024
    JanFebMar
    Apr
    May
    Jun
    Jul
    Aug
    Sep
    Oct
    Nov
    Dec
    2023
    2022
    2021
    2020
    Jan
    Feb
    Mar
    AprMay
    Jun
    Jul
    AugSepOctNovDec