Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

613 members•254 posts

All posts for October 2020

Q. about weird freckle pattern

Hi. About 5 or 6 years ago my house-mate and I got a cat. Around about the same time, I noticed I was developing what looked like age spots (aka liver spots,...

Hi. About 5 or 6 years ago my house-mate and I got a cat. Around about the same ...

•4 years ago

Ketotifen Elixir (liquid) is available again (as are tablets)

Good news medication update! Zaditen (ketotifen) elixir is back in stock. Your pharmacy can obtain it from Alloga UK using the code USP0832. Please let your...

Good news medication update! Zaditen (ketotifen) elixir is back in stock. Your p...

Partner•4 years ago

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What is everyone day to day life like can u work or you of work unwell?

I guess just trying find out how everyone else life has been affected by mcas .

I guess just trying find out how everyone else life has been affected by mcas . ...

•4 years ago

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Can u increase the dose of ketotifen?

Currently on 1mg of ketotifen capsules. Can this be upped to higher dose? It helps but doesn't last long .

Currently on 1mg of ketotifen capsules. Can this be upped to higher dose? It hel...

•4 years ago

Does the NHS (UK) prescribe antihistamine nasal sprays?

Hi, I recently had cause to try and get an antihistamine nasal spray from one of the docs at my practice. I was given short shrift and told that they never...

Hi, I recently had cause to try and get an antihistamine nasal spray from one of...

•4 years ago

International Mastocytosis and Mast Cell Diseases Awareness Day!

Yesterday was the 3rd annual International Mastocytosis and Mast Cell Diseases Awareness Day and our friends around the world have been celebrating. Check out...

Yesterday was the 3rd annual International Mastocytosis and Mast Cell Diseases A...

Partner•4 years ago

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What do you wish people knew about your mast cell disease?

Our friends at Mastocytosis Society of Canada shared this yesterday on Twitter, and I found it really moving, because I realised how much energy I spend on...

Our friends at Mastocytosis Society of Canada shared this yesterday on Twitter, ...

Partner•4 years ago

Night time hell ...

Hello hope today is better day . I joined this forum to ask few questions really I will give little background . I am 30 I have been unwell abt 8 years on...

Hello hope today is better day . I joined this forum to ask few questions reall...

•4 years ago

Hi. First post, think I have MCAS, feeling overwhelmed

Hi everyone, Brief backstory. (OK, turned out to not be that brief, sorry) I'm 55, female living in the UK. I discovered I was allergic to penicillin when I...

Hi everyone, Brief backstory. (OK, turned out to not be that brief, sorry) I'm ...

•4 years ago

Nalcrom available to be imported

Good news on the Nalcrom front!! I have just heard from the DHSC that at least three importers have been able to source sodium cromoglycate from outside the...

Good news on the Nalcrom front!! I have just heard from the DHSC that at least t...

Partner•4 years ago

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Have there been any studies in to tryptase level increases over the lifetime of patients?

Should patients expect their levels to increase X percentage per year?

Should patients expect their levels to increase X percentage per year?

•4 years ago

Suspect mast cell disorder - who to ask my GP to refer to?

Hi everyone, I joined health unlocked initially to discuss my recent vitamin B12 deficiency which is not being treated in accordance with the NICE guidelines...

Hi everyone, I joined health unlocked initially to discuss my recent vitamin B12...

•4 years ago

Nalcrom Update

We have been told by Sanofi that Nalcrom will be out of stock until the week commencing November 23, 2020. We have been in touch with the Department of...

We have been told by Sanofi that Nalcrom will be out of stock until the week com...

Partner•4 years ago

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