Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

544 members • 244 posts

All posts for May 2021

MCAS, Tarlov cysts, autoimmune diseases etc

Hi all I’ve had Mcas for around 8 years now. Seen several of the well known Mcas drs over the years and never got to the bottom of what’s causing my Mcas. I...

Hi all I’ve had Mcas for around 8 years now. Seen several of the well known Mcas...

JimmyBrown

•3 years ago

3 Replies

Chlorine?

Hello - I'm new here and just wanted to ask people a question I have recently joined a gym and deciding to swimming for cardio exercise - but I think it may be...

Hello - I'm new here and just wanted to ask people a question I have recently jo...

ea17630

•3 years ago

4 Replies

Anti-histamine recommendation without fillers etc?

Hello Everyone, My 16 year old daughter has suspected mast cell overactivity and has been trying out various antihistamines (H1) and has been on Famotidine...

Hello Everyone, My 16 year old daughter has suspected mast cell overactivity and...

Sneedle

•3 years ago

5 Replies

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Need guidance on which specialist GP should refer

My GP is clueless about Mastocytosis. Asking me which specialist should she refer me to. I was diagnosed with mytocytosis by a skin specialist 2 years ago. I...

My GP is clueless about Mastocytosis. Asking me which specialist should she refe...

konak

•3 years ago

1 Reply

Nalcrom and Intal update

When I spoke with Sanofi recently they confirmed that we should expect Nalcrom to begin being available at wholesalers in the week commencing May 24, 2021....

When I spoke with Sanofi recently they confirmed that we should expect Nalcrom t...

Jess-UKMasto

Partner•3 years ago

2 Replies

Unusual symptoms -- could this be mast cell?

Hello everyone! I have a symptoms question I wanted to ask on behalf of my husband. We've been trying to figure out if what they've been going through could be...

Hello everyone! I have a symptoms question I wanted to ask on behalf of my husba...

shunter99

•3 years ago

6 Replies

Vaccine

Hello, I have finally been invited for my vaccine! Long story but hospital have taken ages to arrange a time when I can have it with them as they said that was...

Hello, I have finally been invited for my vaccine! Long story but hospital have ...

middevongal

•3 years ago

8 Replies

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Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

All posts for May 2021

MCAS, Tarlov cysts, autoimmune diseases etc

Chlorine?

Anti-histamine recommendation without fillers etc?

Need guidance on which specialist GP should refer

Nalcrom and Intal update

Unusual symptoms -- could this be mast cell?

Vaccine

Search posts

Pinned Posts

Latest poll

Which Adrenaline Auto-Injector (AAI) do you prefer?

Topics

Archive