Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

549 members • 244 posts

All posts for October 2021

Hello and Help!

Hi, I'm cheating here, as I'm from Australia, but the Lupus group hasn't minded so I hope you'll let me sneak a post in :) I hope everyone is doing as well as...

Hi, I'm cheating here, as I'm from Australia, but the Lupus group hasn't minded ...

Anicca

•3 years ago

1 Reply

Mucus and Mastocytosis

Hi, I am struggling with a build up of mucus in my throat that I can can’t clear. Anyone else? And what do you find helps Feels worst when I lie down in bed

Hi, I am struggling with a build up of mucus in my throat that I can can’t clear...

Mothertay

•3 years ago

9 Replies

MGUS & Mastocytosis

Hi anyone else had an abnormal paraprotein identified? I have IgA kappa discovered after a myeloma screen I also have an enlarged spleen, unfortunately a BMB...

Hi anyone else had an abnormal paraprotein identified? I have IgA kappa discover...

jenniferBSc

•3 years ago

7 Replies

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No supplies of zaditen/ketotifen

I went to collect my monthly prescription of zaditen/ketotifen this evening and the pharmacy said they can't get any supplies from the 5 companies they deal...

I went to collect my monthly prescription of zaditen/ketotifen this evening and ...

Woodpecker2021

•3 years ago

21 Replies

Which Covid vaccine with MCAS? Safe to take antihistamines?

Hello - I just wondered if there is any advice anywhere on which Covid vaccine is likely to be safest overall for MCAS people? I also wondered if it is safe...

Hello - I just wondered if there is any advice anywhere on which Covid vaccine i...

Carrieanne21

•3 years ago

10 Replies

Brassica vegetables triggering mastocytosis?

I have been following a very restricted, low histamine diet for a couple of years. This has given some relief from mastocytosis (my symptoms mainly migraines,...

I have been following a very restricted, low histamine diet for a couple of year...

rjkb

•3 years ago

5 Replies

MCAS specialist in London?

I’m still struggling with pain in my ears and deafness. I’ve not been able to get on top of my Mast Cell attack. My GP is useless. I’ve got an appt at the...

I’m still struggling with pain in my ears and deafness. I’ve not been able to ge...

Redfleur

•3 years ago

4 Replies

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Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

All posts for October 2021

Hello and Help!

Mucus and Mastocytosis

MGUS & Mastocytosis

No supplies of zaditen/ketotifen

Which Covid vaccine with MCAS? Safe to take antihistamines?

Brassica vegetables triggering mastocytosis?

MCAS specialist in London?

Search posts

Pinned Posts

Latest poll

Which Adrenaline Auto-Injector (AAI) do you prefer?

Topics

Archive