Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

613 members•254 posts

All posts for December 2020

All the best for 2021

So, 2020 hasn't gone the way anyone expected but I just wanted to wish everyone all the best for the coming year, whatever it may bring.

So, 2020 hasn't gone the way anyone expected but I just wanted to wish everyone ...

Kay-UKMasto

Ambassador•4 years ago

2 Replies

Which type of specialist best able to diagnose MCAS?

Hi, I'm new to the site. I think I have MCAS and am in process of being investigated via NHS. Have been trying to gather as much info as possible. Which type...

Hi, I'm new to the site. I think I have MCAS and am in process of being investig...

Hidden

•4 years ago

21 Replies

Blueprint Medicines findings on Diagnosis of SM and on Quality of Life.

Blueprint Medicines, who are running trials in avapritinib in Advanced SM and in indolent SM have presented their findings at this week's meeting of the...

Blueprint Medicines, who are running trials in avapritinib in Advanced SM and in...

Jess-UKMasto

Partner•4 years ago

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When will those who are shielding be offered the COVID vaccine?

Rare Diseases UK has shared this information that will be relevant to those of you who have been determined to be "Clinically Extremely Vulnerable" and...

Rare Diseases UK has shared this information that will be relevant to those of y...

Jess-UKMasto

Partner•4 years ago

4 Replies

Anyone had Omeprazole cause Myositis?

Hi, I've had a diagnosis of MCAS, but I had an argument with my rheumatologist because I don't beleive it explains my muscular and breathing problems. Because...

Hi, I've had a diagnosis of MCAS, but I had an argument with my rheumatologist b...

Chancery

•4 years ago

11 Replies

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