What is everyone day to day life like can u work or you of work unwell?

[Merkat90]

I guess just trying find out how everyone else life has been affected by mcas .

[JW50]

Hi, before diagnosis I was only able to work from home part-time. Since diagnosis and medication I am now working full-time again and it was going well until I couldn't get hold of medication. I work in a very low stimulus location now (simple lighting, no air fresheners etc). I do have wonky days but was very open with colleagues from the start so if I start getting symptoms such as slurred speech, breathlessness, brain fog etc they sit me in a corner until I feel better or the boss sends me home. As I said, this doesn't happen very often when I'm medicated and I suppose I'm lucky that I work for the NHS who are kind. Hope that helps :).

[Jess-UKMasto Partner]

From my observation there is a lot of variation in the symptom levels. Things that make it easier to work are flexible hours and working environments where environmental triggers can be avoided, and relatively low stress, since that's a trigger for many people.

[Merkat90]

Thank u for your reply I guess it more dysautonomia that making me unable to move and housebound.

[Jess-UKMasto Partner in reply to Merkat90]

Sometimes it can be difficult to distinguish MCAS symptoms from POTS symptoms and they can interact with each other, but certainly POTS symptoms can make working a challenge too!