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The UK Mastocytosis Support Group

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Systemic Masto posts

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Cutaneous or Systemic - help please?!

Firstly - I am so happy to have found this place. Secondly - I am very aware that all my symptoms probably aren't just related to mastocytosis. Thirdly - I...

Firstly - I am so happy to have found this place. Secondly - I am very aware tha...

HelenW1988

•2 years ago

6 Replies

Systemic Mastocytosis Specialists

Hi - is anyone aware of any consultants in the UK that specialize in SM and if so how to get a referral? I was diagnosed over 10 years ago after many years of...

Hi - is anyone aware of any consultants in the UK that specialize in SM and if s...

MrsT63

•4 years ago

1 Reply

Is anyone on Imatinib for Systemic Mastocytosis and has the KITD816V mutation?

Link below says that it is to be used "for disease without the KIT[D816V] mutation". https://www.nice.org.uk/guidance/gid-ta10503/documents/final-scope...

Link below says that it is to be used "for disease without the KIT[D816V] mutati...

MastoMan

•4 years ago

1 Reply

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