Posts - The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

547 members • 244 posts

All posts for July 2022

GP doesn’t know where to send me.

I’m having a massive Mast Cell attack effecting my Kidneys and bladder. No signs of infection but Urinalysis show Ketones, protein and White blood cells. The...

I’m having a massive Mast Cell attack effecting my Kidneys and bladder. No signs...

•2 years ago

Dental treatment. Tooth extraction.

I (82years old) have mastocytosis. One of my teeth has to be extracted. Has anybody had any experience with local anaesthetics and the necessary medication for...

I (82years old) have mastocytosis. One of my teeth has to be extracted. Has anyb...

•2 years ago

what am I able ( if anything to claim for)

I am retired age 66. diagnosed with systemic mastocytosis and myloplastic syndrom. pluss other health conditions was wondering if I could claim...

I am retired age 66. diagnosed with systemic mastocytosis and myloplasti...

•2 years ago

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So hot bad upset stomache

Please can anyone advise me going crazy with the heat.burning up sweating Very bad upset stomach.. knew to mastocytosis And got hospital in morning please can...

Please can anyone advise me going crazy with the heat.burning up sweating Very b...

•2 years ago

Epe pen....demonstration one

Hi I ordered a demo epe pen . Anyone any idea how long it takes to deliver Thank you Lemrac 66

Hi I ordered a demo epe pen . Anyone any idea how long it takes to deliver Than...

•2 years ago

Swollen feet.joint pain.itching .don't sleep.

Hi another night no sleep. Was diagnosed. Aggressive systemic Mastocytosis. With fibrosis.. Got to see hospital in few weeks time.very little as been told to...

Hi another night no sleep. Was diagnosed. Aggressive systemic Mastocytosis. Wit...

•2 years ago

Pains in legs

Can anyone advise diagnosed sm Week end both my legs from my knees to my ankles was extremely painfull.and back of my calf muscles. Tried rubbing my legs...

Can anyone advise diagnosed sm Week end both my legs from my knees to my ankles...

•2 years ago

Anyone with sm .would like to chat

Hi my name lemrac. Anyone with sm who would like to chat on this .I not sure where I stand

Hi my name lemrac. Anyone with sm who would like to chat on this .I not sure whe...

•2 years ago

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Learning my way round all this

Hi my name is Tony.. I have sm.recently diagnosed. Male 66. If there is anyone who can advise me in anyway .it would be appreciated. I live in the UK..thank...

Hi my name is Tony.. I have sm.recently diagnosed. Male 66. If there is anyone w...

•2 years ago

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