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The UK Mastocytosis Support Group

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MCAS Ketotifen

I suffered with long Covid after catching it at 38 weeks pregnant and was later diagnosed with MCAS and put on Ketotifen. I’ve been on it a year and struggle...

I suffered with long Covid after catching it at 38 weeks pregnant and was later ...

RoseStar

•2 months ago

1 Reply

Lost hearing, vertigo and now rash is this?

I hope someone can help me. I was diagnosed with MCAS in 2015 at Guys and St Thomas then discharged when the drugs started to work. I’ve been in and out of...

I hope someone can help me. I was diagnosed with MCAS in 2015 at Guys and St Tho...

Redfleur

•6 months ago

5 Replies

Help finding Consultant Severe Gastro, brain fog & now Anaphylaxis issues! Long Covid?

Usual story of deteriorating health female aged 60 being referred on long NHS waiting lists here there any everywhere! I'm desperate enough to go private so...

Usual story of deteriorating health female aged 60 being referred on long NHS wa...

RoadTrippin

•1 year ago

3 Replies

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Severe Allergic Reaction due to heat. How do others manage this?

Hi all. I was hoping to hear from other people whose MCAS is triggered by heat and what they do to help? I live in UK and when we have hot days they are...

Hi all. I was hoping to hear from other people whose MCAS is triggered by heat a...

TortoiseGuardian

•2 years ago

3 Replies

I’m new and confused - diagnosed with Mast Cell Activation Syndrome

I suffer from I have multiple health conditions which are mostly related to my bladder (Interstitial Cystitis and Fowlers Syndrome) I have a suprapubic...

I suffer from I have multiple health conditions which are mostly related to my b...

Jenb01

•2 years ago

2 Replies

Advice please,

Hi everyone, I'm starting to really struggle now. I'm pretty sure I've ended up with some form of this illness be it Mastocytosis or...

Hi everyone, I'm starting to really struggle now. I'm...

Sotonowl

•3 years ago

19 Replies

Hi. First post, think I have MCAS, feeling overwhelmed

Hi everyone, Brief backstory. (OK, turned out to not be that brief, sorry) I'm 55, female living in the UK. I discovered I was allergic to penicillin when I...

Hi everyone, Brief backstory. (OK, turned out to not be that brief, sorry) I'm ...

Penwiggle

•3 years ago

5 Replies

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