only got half the results :(: Booked the lot of... - Thyroid UK

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only got half the results :(

ChemicalAngel profile image
16 Replies

Booked the lot of tests, T4 FT3 FT4 TSH and they only did

THYROID STIMULATING HORMONE 3.99 mIU/L 0.27 - 4.2

FREE THYROXINE 13.4 pmol/l 12.0 - 22

So where are the rest of the results???

this is what was in the email that accompanied the results......

Please find attached your results in PDF format , all of which were within

normal limits.

We always recommend (although the choice is yours) that you share these

results with your usual G.P. who will have access to not only your medical

history, but also your physical self and will therefore be in a better

position than ourselves to make a full assessment of any symptoms you are

experiencing.

If we can be of any further assistance or you wish your blood sample to be

tested for other parameters before it is destroyed (7 days from sample

receipt) then please do not hesitate to contact us.

Seems that I have not got what I paid for, but there are my favourite 3 words again. :(

Ann xxx

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ChemicalAngel
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16 Replies

You paid for these tests to be done privately?

surely that would by-pass the usual NHS lab 'as TSH in range we don't test others' thing? In which case I would ask for the rest before sample destroyed, def need FT3.

J :D

ChemicalAngel profile image
ChemicalAngel in reply to

Hi, yes and I have fired off email to state that I had paid for all tests and expected the results for all tests, not for a basic profile.

Hopefully will get the rest done.

Ann xx

greygoose profile image
greygoose

Well, they may think that FT4 is 'normal', but I don't! Way, way too low! And that TSH may be in range, but a TSH that high would kill me. I wouldn't be able to get out of bed. So much for private tests!!! You've been swindled!

Grey

ChemicalAngel profile image
ChemicalAngel in reply togreygoose

Hi Grey, funny you should mention that, as hubby has to help me to get out of bed as I am so stiff and unable to move!! lol

I have sent them email asking for the other results as I paid for a full profile not just basic test.

Ann xx

greygoose profile image
greygoose in reply toChemicalAngel

Good! By the way, there's not much point in doing the total T4 test, it doesn't give you much useful information. What is important is to know how much T4 you have available in your blood for use by your body, and that's the FT4. Could save you money.

That's absolutely appalling. If you paid by credit card I would stop the payment, you didn't get what was ordered.

Your results aren't normal at all! No wonder you feel so awful. Even my previous GP when my FT4 was 13 said it was far too low. I think you need to take control and get yourself some treatment. Hugs XXX

ChemicalAngel profile image
ChemicalAngel in reply to

Hi, unfortunately I dont possess a credit card, but I have emailed them and will ring them on monday to enforce that I paid for a full profile and not a basic test and that I want the rest of the results.

Who would I speak to to get treatment, as my GP refuses to believe that there is anything wrong, and will not take notice of private testing.?

Ann xx

in reply toChemicalAngel

Hi Ann,

I hope you get your blood tested again and get the full profile.

I'm funding some of my treatment, I am bypassing the GP's. I'm not happy about it as I really can't afford it, but don't feel I have a choice now. I've got to the stage where I'm refusing blood tests, simply had enough now.

I know you've been struggling for ages with this Ann, there's no doubt at all you should be getting treatment for hypothyroidism.

Along with my 4 page letter of complaint I wrote last week to my GP, I put in before and after pics, a copy of the petition to the Scottish Government, about 20 pages re Hypothyroid symptoms, and I photocopied that link we had recently about why lots of patients on T4 still feel crap. It was a huge envelope full. Of course I haven't had a reply, but I was determined to make my point.

Hugs. XXX

ChemicalAngel profile image
ChemicalAngel in reply to

I will see the new GP after the new patient medical as moved docs this week.

Will try and see if they are sympathetic to thyroid symptoms and dont stick rigidly to blood results.

Thanks for the hugs, much appreciated xxx

Ann xx

in reply toChemicalAngel

Crossing everything for you Ann. XXX

helvella profile image
helvellaAdministrator

Was that through a private lab? I'd have rung them up - or emailed - straightaway.

Hope it gets sorted.

Rod

helvella profile image
helvellaAdministrator in reply tohelvella

Sorry about that - I had your blog open for ages before I got the chance to type my reply! Then everyone had responded! :-)

ChemicalAngel profile image
ChemicalAngel in reply tohelvella

lol :D

ChemicalAngel profile image
ChemicalAngel in reply tohelvella

Hi Rod, it was private and I fired email back straight away, and will ring on monday to reinforce that I paid for full test and not the basic profile, and that I want the results of all the tests that I paid for. I didnt see the email till an hour ago as been out most of the day.

Ann xx

nobodysdriving profile image
nobodysdriving

hope it gets sorted chemical :(

puncturedbicycle profile image
puncturedbicycle

I'm so sorry Ann. This is inexcusable.

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