Very well worth seeing Dr B her willingness to take the time and interest in my health and interest in the petitions was a 100%.
Dr. B kept the letter from Dr Lindner and copy of Scottish petition she read Thyroid UK response to petition.
I achieved being prescribed T3 and T4 she prefers to try this first to see if T4 is not agreeing with me. Dr B said that there are some people that just can't tolerate T4 T3.
Dr. B believes one step at a time.
I was hoping to get ertha or armour but like she said one step at time.
She said that armour and ertha is difficult to regulate.
I am also having all the adrenal tests done syncline test not sure of word cant read Dr. B's writing plus cortisol and ferritin, vit D as lovely Scottish ladies recommended along with coeliac screen test and full Tsh T3 and T4 test.
My medical history proved I have only ever been tested Tsh T4.
Dr. B admitted there is definite evidence that people with hypothyroidism are suffering and are not getting better and that people should be treated by their symptoms and as individual people.
Dr. B admitted that fibromyalgia is a given name and there is not enough known about it.
Dr. B supported more trials needed to be done.
Dr. B was very informative about how the food chain is not in favour of people's health particularly where corn syrup and chemicals and horse meat and artificial hormones. I horrified when she told me there is penicillin in milk.
Dr. B insisted that allergy gluten, wheat, lactose is proven in people with hypothyroidism.
Dr. B insisted low GI diet.
My husband was with me and took on board every word.
I couldn't express more deeply how so many hypothyroid sufferers were suffering and should not have to.
Dr. B agreed there is no doubt about that.
I am having all the tests done privately wish I had a magic wand to help all you lovely ladies.
I will go without my usual therapy treats for while.
I not trust the NHS Dr. B. said that there could be the chance the test would not be done properly through the NHS. Anyway onward and upward on my way home now.
It will be interesting to see what the tests come back with and what Dr.B's attitude will be like then hopefully more supportive.
Have a lovely weekend all. XXX
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Kezzerb
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Thank you Louise yep totally agree none of us sufferers should have to dig deep in to our pockets I fully support all sufferers and will keep supporting petitions and contribute towards our cause.
I am very dedicated to all lovely Thyroid sufferers you have all touched my heart and mind.
At the end of the day once I get results back I will decide my own health I have suffered and researched enough to understand what is right and what is wrong with how hypothyroid sufferers are being treated.
It is obvious there needs to be a more serious approach and understanding from doctors and endocrinologists we all have to make them aware of that.
I would like to see specialist clinics set up for Thyroid conditions.
I would sooner go with Thyroid Uk's advice and Scottish petition.
I count myself very lucky that I was diagnosed 30 years ago when there was a Thyroid Board in the Nottingham Trust which was disbanded when the lead Endo retired.
I really feel for my GP as they have to be the specialist he was. I understand that Prostate Cancer care is being passed to them as well. Hubby has had the best care from the 3 experts, (Surgeon, incontinence nurse and ED specialist) here in Nottingham where there are in one functional building.
When I win Euro millions I will set up a trust fund for the Thyroid board to be reinstated in Nottingham
Thank you for the info although I already have the information archived.
I have been researching for many many years as I developed sjogrens and fybromyalgia way before hypothyroidism.
What baffles me is how can an illness have a name when it is said there is no test to prove it exists.
Hypothyroidism I think is connected to ME, CFS like many other autoimmune diseases. Connective tissue diseases such as Sjögren's syndrome Lupus arthritis scleroderma are connected.
All I know all the symptoms are mimicked but mainly when the immune system is angry it attacks infection but also attacks other organs.
The main thing is to get immune system healthy again.
I believe these syndromes as specialists call them because syndrome is like saying they fully understand why.
I believe they all begin from infection of sorts.
But also through the food that people eat that has been laced with chemicals along with pesticides used on food does not help.
Basically I believe there needs to more specialists that do more research take more of an interest and do more trials but they cost money.
All I know I care deeply about supporting hypothyroid sufferers get the help they so rightly deserve and that they are treated as individuals without insulting them with mental illness labels and that their illness is taken seriously to them it is very real and doctors should be made to acknowledge that.
All I know the whole deal of having 2 autoimmune diseases connective tissue disease abnormal blood vessels sucks.
But hey musn't grumble musn't let it beat me.
It's damn painful but you know what they say pain let's you know you are alive.
Have to be thankful for that there is always someone worse off.
Thank you thyroid Uk for helping me on the right path.
Hi Pleased it went well, . Yes, she is very careful ,so one step at a time. All my best consultants say that as it is the only way to analyse effects of drugs etc.
Ask Sue for a copy of your letter, then you will always have one So useful. She will write clearly to the GP ( good letters) and tell them what tests to do. It should not be any problem ,once told, it is amazing how difficult GP`s respond! Try NHS first and only then pay.If you do it this way, the only cost should be the reasonable cost of a consultation. letters come out within a few days, so usually Tues or Wed.
Thanks,Kerry, she is completely happy with using Blue Horizon, I do, it is a lot cheaper and the same Lab all the private hospitals use.
I hope you soon feel better. My thyroid was stable after a year of seeing Dr. B in spite of all my other problems.I have armour allergic to levo ) and T3, let me know how you do.
Hi Kerry,She does have quite a few patients on Armour, Erfa. Then if nothing else any good, last resort just T3.A lot of hospitals, especially cardiac units are very against NDT and it has cause me problems with other doctors.on my frequent emergency admissions. So good idea to try the T4 and T3 first, that is what she likes to do.
Hi I am on a complicated drug also plaquenil hydroxy chloriquine for sjogrens syndrome so I have to come off that as she advised. Some of my symptoms do reflect in the side effects of that drug. I've been on it for nigh on 11 years. So I agree with her step by step. I could of suddenly become allergic to it. Looking forward to blood test results and trying T3 and T4.
I have had sjogrens for many years. There was no drug and the only test was a lip biopsy but even then I could not risk a biopsy.When the drug came out it was too dangerous for me. I have all the toothpaste, gel, mouth wash and pastilles. All but the pastilles on a script. My Rheumatologist lectures to doctors and specialists to try and make Sjogrens become know, still a lot of ignorance. He is president of the association. I often have to educate medics when in hospitals etc.Yes , I have a lot of drugs and one gave me autoimmune Hepatitis, although I had been on it for a long time.
Gosh Jackie we have alot in common don't we. The rheumatologist I saw shone a light in my nails told me I had abnormal blood vessels. Then did a schirmer test that was positive. I was told I had connective tissue disease come sjogrens and fibromyalgia however no test to prove fibromyalgia. I too use gel tears and non fluoride toothpaste. The trouble with auto immune they are all connective and can go on to other things best to get immune system healthy. Seems to me the trouble auto immune diseases there are not enough specialists that know about them. There should be specialist clinics for autoimmune connective illnesses at least we can all be guinea pigs all in the same boat without going round in circles or having to be our own health advocates.
Hi Everyone. We gave up milk years ago along with beef due to the amount of drugs pumped into cattle and the poor badgers get the blame. Anyway the best substitute we have find is Rice Dream for milk. brill for cooking drinking but sadly not found a substitute for putting into tea!
Thumbs up on giving up beef and milk. I have been sending away for Kangaroo there is no fat in it at all. I have it occasionally. I know some people may not approve but it is recommended for people with low immune systems it's easy to digest.
I like Kara (I think the name has recently been changed to KoKo) which is a coconut milk drink. It doesn't curdle in hot drinks and has a nice neutral taste. I used to use Oatley oat milk but changed when I went gluten free. I have used rice milk too but I don't like the Rice Dream brand (the taste or the ethics of the company that manufactures it). If I had a penny for every kind of faux-milk I've tried (and when I go abroad to visit family I try out a whole new lot)...
Alpro soya ok for tea but not coffee (you can get unsweetened and organic)- it curdles. Don't take milk either though do eat cheese!!! Not much sense in that really is there? Being veg got to eat something. I try to have 5 veg meals 5xweekly. Have to say, get really bored trying to think of different meals each night especially when have to cook two different ones.
No, many people cannot tolerate it this is true and it isn't everyone's favourite. As long as I only have it in tea I'm fine. Don't eat cereal anyway and with porridge yoghurt is used. And yes I do eat full fat as well as fat free and half fat. We need fat --- do wonder with all this paranoia about eating fat if it could be one of the reasons Vit D is not retained. My endo told me to take Vit D supplement with something very fatty like a doughnut? YUK to help absorption!!! Will stick to the yoghurt.
Not changing endo just yet --- this one at least did listen & read my long list of side effects from T4 & is trialling me on T3. So that at least is a step in the right direction. Eat very little sweet stuff as not keen on most of it. Yoghurt (cow or goat) is just fine.
The food issue seems to get bigger? If thyroid problem can't eat goitregens, walnuts, milk (cos of penicillin so that would have to include yoghurt) meat has too much of wrong fat, chicken (if not organic) stuffed with water ???, fish picks up crap which us humans have dumped in the sea, packet vegetables (not frozen ones I gather) cos some horrible stuff is used in the packaging --- so what is left. Vegetables, and this is proven, do not have the nutrients in they should have because the soils has no time to recover one year to the next: NHS won't suggest let alone give supplements of vitamins and minerals to get us back to the optimum levels, it is left up to us. A range is just a guide to tell GPs, consultants and us how far or near we are to the optimum levels. My endo said forget the range : well, why have them? They have to be good but are not used correctly. I give up.................................
Totally agree best to grow your own or buy organic locally. The old ways were best. When I was a child mum cooked by the day of course there was the local butcher baker vegetable shops then. No chemicals used or pesticides. People are reeducating themselves where food is concerned. Supermarkets make angry they sell all the stuff that is bad for you and they then have the antidotes available like gluten free.
So glad to hear that you were able to see Dr B and she has given you some hope. I have been seeing her - not very often because of finances, admittedly -since recommended by Jackie, (thank you so much ) and have myself recommended her to others, so I'm always glad to hear somebody giving her the praise she's due. Word is obviously getting around!
I had to go back to the NHS for my tests and it's true she wasn't very impressed, especially as my liver ultrasound was done in the surgery and not by a consultant. I did have the Synacthen test at the Nuffield as I didn't trust the NHS to do it properly and quickly enough - I was very worried about having to wait for months for that.
Before I knew of Dr B I did get some private blood tests done by Blue Horizon when my GP refused everything because they were 'nothing to do with the thyroid' according to him. But he had to repeat the lot and more after Dr B requested them (the iron hand in the velvet glove ). He also flatly refused to prescribe T3 when I asked about it - it was Levo or nothing - but has prescribed it after her request. She does tend to try that first because it is in theory available on the NHS, whereas NDT isn't.
I didn't do well on either Erfa or Armour, so returned to T3 as 'the least bad' of all I had tried, and there was nothing else left to try, at least nothing I could get my hands on - eg purified levo.
Mind you, I don't know if he will continue with the T3 because he obviously had no idea what the cost was, and asked for 100 5mcg on the prescription! It was going to cost the pharmacy several hundred pounds to get this, so it was put back to 28 x 20 mcg! As I can only tolerate a crumb at the moment my prescription lasts ages, so we shall see.
If it was up to him I would still be struggling with levo, or rather not because I suddenly became very intolerant to it after 12 years - and seeing a psychiatrist, which was his very first line of action.
I only hope that Dr B doesn't start to come under scrutiny and harrassment by the bad guys - hopefully her position and status will prevent that, but we must be careful to protect her - I'm not sure how!
I've ony been aware of TUK for a year, so I don't know about the history that led to Dr P and Dr S getting such terrible treatment from 'the establishment - this must not happen to Dr B. She is one of a very rare breed and we need more endos like her. She actually told me that she still learns a lot from her patients - if only our GPs were that humble and open minded.
Sorry for the long post, just wanted to say good luck and hopefully onwards and upwards.
Hi sorry I am only just replying to you I didn't get your email alerts for some reason. However thanks you again for your kind words and yes Jackie does deserve praise thank you Jackie so much. As for Dr. B I don't think we need to worry too much about her she can hold her own she has gone through the wringer and got back on top. Search her name on the internet she has come up against the bad guys. Actually I will PM you the link. I have discovered she only works for the NHS with medical emergency but she is starting another another day Tuesday in two weeks as well as Saturdays. We do need to protect her like all sympathetic endocrinologists. I am so glad you are feeling better but sorry you had to go through the crap with your GP all the more reason for the petitions and pushing to stop the injustice of how we are being treated. It is so shameful.
So she's starting another day on Tuesdays! Must be due to all the extra patients coming her way through TUK! Shame we can't get any commission for the recommendations.
I didn't know she had come up against the bad guys, I will have to look it up. I'm not actually feeling very good, but it's more down to not being able to tolerate the meds and other issues than the fault of Dr B. I'm having to take the T3 very slowly.
Thank you for your kind words, I guess most of us have been through our own kind of hell in some way or another with this illness and the rotten GPs - with a few exceptions.
Thumbs up on goats milk, goats cheese and goats yoghurt ooh and ice cream
I used to drink gallons of soya milk as i was menopausal and read it was beneficial. I do often wonder the effect it's had on my thyroid function. The almond milk is lovely, but then i read almonds aren't good either for thyroid function! Both these are so good for lowering cholesterol, such a shame!
So pleased you had a great consultation. I wonder if Dr B could run workshops for gp's and endo's !!
You could always ask her what have you got to lose. She was very informative of how we were all hunter gatherers and how wheat was for animals not humans.
I think using herbs all the time is a very good idea.
yep, my Dad always said Cereals are only supposed to fatten up piggies! have a look at 'wheat belly' or Dr Mercola to see how it's not actually wheat anymore.
Thank you for the positive post - I love to see folks getting better - it gives eveyone hope! J
Hi, very interested to know whois this Dr B , and her contact details, what part of the country she practises from. I am desperate to find someone to help me, had hypo for fifteen years now at least and have NEVER felt well now I fel very unwell again and need to see someone who can help ! Any info gratefully received
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Shame she's Private. 
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