Thyroid UK has now been informed that there has been a change in the way feedback should be submitted for consideration by the Scottish Parliament in support of the Petition which was discussed on 5th February 2013.
Instead of each of us writing separately to the email address that was originally given out, the Scottish Parliament has now stated that the most effective and helpful way for lots of individual members to input into the process, is to write to Thyroid UK.
Thyroid UK will then summarise the comments and include the information with their evidence submission.
If anyone would like to submit something, please send an email to enquiries@thyroiduk.org by Sunday 3rd March 2013.
For information on this very important Petition entitled "Effective Thyroid and Adrenal Testing, Diagnosis and Treatment", please see the page in the Campaigns section of the main Thyroid UK website here
I haven't done this yet and am not quite sure what sort of thing I should write. Are they after an account of my miraculous recovery on NDT v thyroxine ?
On the news item about evidence submission, there's a link to the actual questions that TUK has been asked. I would write about whatever you feel you've experienced that would help TUK answer those questions. Does that make sense?
I am more than willing to write however I do not know what exactly what to write. I am waiting for an appointment to come through from Dr B. I am seeking her help as I have not felt well since being diagnosed with hypothyroidism and taking the levothyroxine. Which is and has been for numerous other people noted on all the thyroid sites. All my symptoms I have written in blog in my blog on this site. I am still waiting for blood results from GP that I requested. Guidance of what to write would be most helpful.
Not too sure a "Copy and paste" letter is a good idea? Perhaps make a list of all the bad experiences you have had with doctors and endos etc and then "cherry pick" statements from the "copy and paste" letter. Then put all that into a letter in your own way...complete with spelling mistakes for for added authenticity!!? That way they won't get the same letter from hundreds of people.
Better to be short sweet and simple rather than something they might very well give up on after reading the same thing over and over again.
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