I could really do with some advice!
I have suffered from hypothyroidism for 11 years (I'm a 37 year old man.) Having been under the care of an NHS endo for the first three years in London, I have just been being treated by my GP with thyroxine since. I still had all the symptoms of being hypo and over the years they got worse and worse.... Extreme fatigue, low body temperature, depression etc... All the usuals.
Havig seen a hopeless private endo in London at the start of 2012, who said all my levels were fine I eventually sent to see Dr S in Birmingham in October 2012. At this point my body temperature was between 34.5/35.8 degrees and I felt horrid. Dr S said there was no doubt I was still very hypo and has raised my dosage of thyroxine from 150mg daily to 325mg currently. My GP has been great, fully supportive and done exactly what Dr S advised.
Every time my dosage increased by 25mg I felt better after a few days for about the next three weeks before the hypo symptoms would reemerge, but gradually the symptoms lessened. When I saw Dr S at the start of January he said that we should review how everything is going at the start of February and think about starting T3 medication in addition to the thyroxine.
Over the last two or three weeks I've started attending the gym again, which I hadn't been able to do for about four years, as I was just too exhausted. However, as the exercise progresses at the gym and then afterwards each time I've felt really unwell.... Pale, faint, cold, really achey, light headed, and it's taken at least two days to recover and for my body to stop hurting.
My last set of blood tests (done this time at the GPs, so no T3 result) put my T4 levels above the acceptable range (42?) and my TSH at around 0.5. When Dr S took my temperature in January it was slightly higher at 35.9, but I do feel much warmer generally - if not all the time, most of it. I do feel better for taking more thyroxine but I don't feel anything like 'normal' yet, especialy around my fatigue levels and how much sleep I need to feel ok. I'm taking a multivitamin and B12 every day currently and take my 325mg of thyroxine at night.
So what I would appreciate some of your advice about is:
1) Has anyone else experienced similar symptoms during/after exercise? If so, do you know what causes it.... Is it lack of T3?
2) Has anyone any advice about starting T3?
3) Is it better to take the T4 and T3 synthetic thyroid prescribed by my GP, rather than starting on NDT, like armour?
4) I was thinking of paying privately to have another full thyroid screening as the GPs rest are not good (another £300...). Has anyone any experience of also having thyroid urine tests and how accurate these results are? Are there any other useful tests that will help diagnose optimum thyroid replacement/treatment? I'm guessing I also need reverse T3.
5) Whilst Dr S is friendly and supportive, I slightly worry sometimes that he is just treating symptoms and not looking at the chemistry. Also he is miles away in Birmingham and I live on the Surrey/Hampshire boarder. Does anyone know of an amazing endo that's London or South East based?