This morning, I awoke having had something unusual called.... sleep. I had some friends call around last night, and I had my two medicinal glasses of red wine, did some epic moaning and story telling, with bells on, and slept the sleep of the wicked. My man slept on the landing, as for the last couple of nights, I have been doing the highland fling in the small hours, and he has a week-end of workshops to teach. We have a lovely spare bed on the landing, curtained off with rich velvet drapes, and decorated with interesting pictures and lighting. My friend Hairy Legs likes to sleep there, sometimes for weeks at a time. However when he is not there, it is used as an 'occasional huff bed' - an escape from any form of bedroom night time turbulence of the wrong kind, and this includes full on snoring - which I have to admit these days is as much myself as him.
Some interesting changes are going on for me regarding the LDN. Having started on a tiny dose lower than many start on, due to my awful history of drug allergy and profile of five autoimmune naughties. Although optimistic having read up for six months prior to commencement. Some very interesting changes have come about already.
I was never ever listened to in the past regarding my extensive psoriarsis... nothing would touch it, tar would blister me, steroids would do nothing.... and two main triggers 1) any viruses or bugs and 2) my monthly hormones as for stress, no change. I always maintained there had to be more than one disease, and worked hard to work out the other four and have them verified in a hospital setting, which I did.
I am on day one of my cycle now. Normally I would have been in bed for around four days, with a flare up of everything and my skin... which goes mad at this time, or during a virus or exposure to an infection. I am in bed now, but I think up again soon, so a real change there. Visitors have noticed a marked difference. Also my water retention which with the help of Dr BDP has dropped from up to 12 pounds down to five at this time, this month, apart from half a day with a bit, has not really appeared in it's normal unwelcome form. I am of course still keeping up with the excellent diet, including oily fish or the supplements, and everything else I am supposed to be doing and eating carefully etc. Also I have been in and out of hospital with the children surrounded by forbidden paninis and glowering at people whilst eating my own body weight in fruit nuts and avocadoes. I am doing ok, normally being in that setting full of children with ailments and ill already... can be quite tricky for me. The diet is going fine for me, always been healthy, the only difference has been the gluten free since last August. My skin is noticeably improved!
Also my husband relies on my infamous PMT to get all the things done which he has avoided for the last month. He normally waits for me to get cross about all the things he has lamented about not doing over the last 28 days, how he has no time, or something else is more important etc. I usually produce a list of things he has promised himself he is doing and has avoided..and draw up a star chart and get cross about the contamination of our social life...This morning, having knitted his eyebrows together for the last week telling me how all over due reports and work projects are commencing today... I was not at all surprised to be treated to full on music all morning, as he listened to past recordings, learnt new tunes for bands he is in and generally fiddled around with recording equipment wearing a new pair of slippers - whilst informing me that everything was in hand. Normally I would have half a hissy fit...as this means no fun with him next week... but I just could not conjure up the hissy fit... I just resorted to writing the word cancelled on every musical engagement on his diary and whiteboard. The things he has promised to do will flash up at ten minute intervals starting from this afternoon. If my PMT continues to disappear at this rate I may have to purchase a cattle prod.
Meanwhile I have had not much going on as both my children have been off school an awful lot with their migraines and horrid ailments... I have had a non stop cooking frenzy and teaching fuss going on. I bought some ready made gluten free pastry the other day, it behaved like plastercine and drove me nuts and was last seen screwed up in a ball and stuck to the lavender bush outside my kitchen door, even the gluten free birds in the area have changed their flight path as a result of it. We have had lots of ongoing fuss ongoing with wet log piles. Currently I have moved rather a lot of it inside and stacked it up in the hall against the radiators, which he tries hard to ignore as he navigates past it. The cold weather does change behaviour.. for a number of nights I kept hearing this disembodied meowing as for the umpteenth time my elderly Tiger got herself shut in the airing cupboard - the cold snap had the opposite effect on my man, who insisted several times on how it was not cold and disappeared in a paper thin leather jacket only to appear back later looking frost bitte, feral and decidedly chillly.
Tomorrow I climb up for the first time on LDN to 2 mg, hey ho, this is looking good for me, and all three hospitals are watching my progress with this!
I have never had any form of break with my diseases.... so hoping it is not a placebo effect...I think I would probably be to cross for those to work... but here goes... next dose tomorrow.
Mary F x