I have been unwell for the past 5 weeks - symptoms of hypo. Have been hypothyroid for 15 yrs. Couple of times it has gone out of kilter and I have seen an endo privately, had blood tests and had meds increased which has always helped my symptoms. I got a letter at begining of May after seeing the endo at the end of April ! to say that my TSH was supressed and I needed to reduce my 125 to 100 for a month but if I had unwanted symptoms from this then I was to take 125 every other day. Needless to say I did have symptoms when I reduced to 100, then I tried the alternate dose but by this time I was ill - v slow pulse, cold, lethargic and cardiac symptoms. I went to see my GP who after checking my heart has referred me to a cardiologist. I requested thyroid function blood tests from the GP and result was TSH still supressed but my Free T4 was 17.3 (Ref range 10-25) which was lower than it was in March at 22.7. They did not check my T3 which was in the middle of the normal range in March. My endo initially said that I was taking too much thyroxine (I had gone back to 125 ) I pointed out that my T4 had fallen, he reluctantly agreed, and when I pointed out that my T3 was not recorderd he said that it wasn't important to know that!! I just got the feeling that he wasn't at all interested. I explained that my throat hurt and my thyroid felt uncomfortable, he had a quick feel and said I may have had a bout of thyroiditis. Outcome was he agreed for me to stay on 125 and have a review in two months but to get my bloods checked with my GP before I see him. I know the T3 won't be done again even though I request it and so does the nurse who takes the blood. This is the care from seeing an endo privately! - I am begining to wonder if this endo who is retired from the NHS and just sees private patients has lost interest! Would be interested to hear others experience. I have been off work for the past three weeks and don't feel well enough to go back but its so difficult when there is such vagueness about this condition.
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