Where do I go from here my endo won't treat me if I want to pursue a supressed TSH?
I've been away from the sight for a while had computer problems but thankyou to those who replied to me last time. About a year ago i started taking 5mcg of T3 twice a day with my 100mcg of thyroxine and started feeling a bit better. I went back to my Endo to find out he had had a heart attack and was replaced by another locum who promptly stated that T3 wasn't something that the NHS liked prescribing, I insisted she upped my dose which she reluctantly did. The letter arrived regarding my blood results full of miss-quotes and incorrect information and almost saying my symptoms were in my head. With an almost throwaway comment at the end of the letter she said my Vit D was under range at 12 (50 is the recommended) I was at this point on 10mcg T3 twice a day and 100mcg levo and started losing weight and feeling fantastic. Stopped falling asleep all the time and actually got my mojo back, with the support of my nutritionist my attempts at dieting also became easy, my willpower had returned as had my sense of selfworth. I lost 2 stone in about 4 months and everyone saw a change in me. I went back for my 6 month review to be met by yet another endo. She was pleased with my progress but said my TSH was too low because it was supressed and subsequently slashed my levo down to 75mcg for 4 days and 100 for 3days. Over the next three months everything started going in reverse. I found an article on Thyroid UK which stated that being supressed is sometimes what is needed to feel well and unlike some research questioned if it actually caused osteoperosis. Fatigue and the ensuing inactivity were the reasons why you would be more likely to develop weak bones. I sent this to the endo before my next revue along with the latest blood results my TSH was now up to 0.78 from 0.09 (0.3-5.5), T4 down to 10.8 from 14.5 (12-22.0) and T3 down 4.5 from 5.9 (3.1-6.8). On my next visit she wasn't impressed with what I had sent her and refuted the article and basically said that if I wanted to pursue this she would no longer treat me. My health has gone down hill, I've had a kidney infection, shingles, one of my liver function tests has become abnormal again after going normal and I'm putting on weight. I don't know what to do, any advice?
Thanks