Erfa thyroid not working. Different formulation... - Thyroid UK

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Erfa thyroid not working. Different formulation? Bad batch?

Freedom2025 profile image
15 Replies

I am currently taking erfa thyroid and have noticed a significant decline in potency and quality with the batch I got in November 2024. Again in the batch in February 2025. All my low thyroid symptoms have come back like tight chest problems breathing swallowing fatigue feeling so weak and unwell. This is beyond awful. Does anyone take synthroid or other types of thyroid. If so any success. Thank you.

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Freedom2025
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15 Replies
ELKA49 profile image
ELKA49

I had tried Synthroid in 2015 I had nausea and vomiting symptoms from it and also a pain in the stomach like there was a hole there and too fast heart rate. I was told by the cardiologist that I could not take Synthroid because of the fast heart rate. I tried NP Thyroid and compounded desiccated thyroid and still had the throat closing up, and hard time breathing, same symptoms as what happens when I take the current batches of desiccated thyroid ERFA. There might be issues with all these medications as none of them seem to be balanced from the symptoms that I have experienced. I am also in Canada. I hope things improve and Apotex Canada fixes the issues with the desiccated thyroid ERFA medication batches as there seems to be multiple issues with the ERFA batches since the company was purchased by Apotex Canada two years ago.

Freedom2025 profile image
Freedom2025 in reply toELKA49

I guess we write to them phone them also report to health canada and the media like rebel news this happened in France when they tried altering with synthroid alot of people got really sick even in the u.s. Walmart kept trying to switch people over to the bad new formulation again people became very ill it feels hopeless

ELKA49 profile image
ELKA49 in reply toFreedom2025

I have written several letters to Apotex Canada about the issues with the bad batches of ERFA desiccated thyroid asking them to test the manufacturing process and also check if something has been changed in the medication or if there is contamination. The three letter responses I got back from Apotex Canada state that their manufacturing process has not changed and the medication passes quality control so it's the same as usual so there is nothing wrong with it to cause the type of symptoms that I have of anaphylaxis. As well I reported the bad batches to Health Canada several times and they have done nothing to regulate the issues. The problems of the bad batches of desiccated thyroid medication ERFA are being completely ignored by Apotex Canada and Health Canada like there is nothing wrong with this medication despite complaints that say otherwise.

Freedom2025 profile image
Freedom2025 in reply toELKA49

Well I've done the same today wrote to apotex, my local member of parliament the federal health Minister as well as I have reported to my pharmacy. They have forwarded to the supplier. I am going to see the naturopath tomorrow at 1030 am she has tonnes of thyroid experience and she takes as well she suggested we get the prescription compounded instead of buying the erfa tablets from the pharmacy she felt maybe better potency anyway I see her tomorrow you can always email me privately directly if you want to discuss this in more detail. She also said we can get t4 and t3 compounded as another option.

ELKA49 profile image
ELKA49 in reply toFreedom2025

I would definitely like to email privately and discuss this in more detail. I have sent you a chat message on your profile about the email addresses. My GP had already wrote me a compounded prescription for desiccated thyroid from Medisca and I tried that also had the same issue with experiencing anaphylaxis symptoms as well tried the compounded levothyroxine and had the bad reaction of throat closing up and hard time breathing. I hope these compounded thyroid alternative medications can be helpful to you. I am also in Canada so the compounded meds are manufactured here. Maybe there is something going on with all of these thyroid meds even the compounded ones.

Freedom2025 profile image
Freedom2025 in reply toELKA49

I tried to send you my email but the a.i. in this forum said not to do I guess for people's safety. Not sure what to do it's great to chat with another fellow cabadian that is going through this! What should we do

ELKA49 profile image
ELKA49 in reply toFreedom2025

Please check your chat messages under your profile section in HealthUnlocked I sent you a message there about the exchanges of emails. It did allow me to share my email address in the chat messages section for directly sending you the chat message.

Freedom2025 profile image
Freedom2025 in reply toELKA49

I've got an idea. I'm going to recommend a great business here in victoria bc. I would call them anytime and they will answer. Christmas hill office cleaning. Google them And give them a call.

Freedom2025 profile image
Freedom2025 in reply toELKA49

I'm in canada as well I'm so sorry we are going through this if I don't have this medication I can't really survive. What about people who have had their entire thyroid removed. Life threatening for them

euonymus profile image
euonymus

I took Synthroid many years ago for several years and would still be on it if I'd had my choice. But I did notice that some batches weren't as active as others and there wasn't any official remedy for that. Your concerns are valid but I suspect you'll be made to feel that they aren't.

Freedom2025 profile image
Freedom2025 in reply toeuonymus

Oh man thats not good re synthroid. But when it was good it really helped you. Thats good for me to know as i msy have to try taking it i honestly dont know. I feel there is so much more to this whole thing. I received a response back from apotech just saying they have started a complaint log for my inquiry. But we know how that goes. We will get to the bottom of this.

Freedom2025 profile image
Freedom2025

Well I tried my best to do the bone scan at the hospital today but couldn't do it. Last night I had a ct scan of head and neck but we didn't do contrast due to an adverse reaction that went on for 2 weeks previously. They felt it would still be helpful to have done I got a pretty bad headache from that in the temples and my tongue went weird. It is a very dangerous amount of radiation. Anyway went to the hospital today they wanted to give a needle with the radio active material then you wait 3 hours while it settles into your bones! Then go into basically a coffin for an hour. Just not going to work for me I almost threw up so I escaped from the hospital. Epic fail today. All the while trying to figure out the thyroid situation and breast cancer. I'm going to be getting a full thyroid panel test done but earliest I can get into lifelabs is next Thursday.

DubStar profile image
DubStar

Hi, Big sympathy with you!

I am also experiencing the return of hypothyroid symptoms from batch LF31040A 30mg since using if for my pm dose.What have you done about bad batches of Erfa? Who have you complained to?

I will be contacting Roseway pharmacy who I got them from, letting my Dr know and complaining to Erfa directly.

I have been using ERFA for many years with no problems, prescribed by a Dr who recently retired. They got their supply directly from Erfa in Canada. This is the first batch from Roseway under a new Dr.

I am in the UK.

Freedom2025 profile image
Freedom2025 in reply toDubStar

Sorry to hear this so please notify your pharmacy and write to apotex. Give them batch and lot number which you can get from pharmacy. You could also write or cc federal minister of health and your local mp.

DubStar profile image
DubStar

Thank you.

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