Erfa thyroid problem: Hi. Im on Erfa thyroid and... - Thyroid UK

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Erfa thyroid problem

Anette65 profile image
10 Replies

Hi. Im on Erfa thyroid and i wounder if anyone else has converting problems with batch no 00023965?

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Anette65
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Clutter profile image
Clutter

Anette65,

There've been no complaints of bad Erfa batches in a very long time.

Whatever your problem is, it can't be a conversion issue because the T3 in Erfa will overcome poor conversion.

Anette65 profile image
Anette65 in reply toClutter

What ever medical treatment i choose it seems like its working really well for 4-5 years. Then I need to change to something else. Problem is that there is nothing more to try. :(

Clutter profile image
Clutter in reply toAnette65

Annette65,

Have you had thyroid function tested recently to check you are optimally dosed?

Anette65 profile image
Anette65 in reply toClutter

Im a bit over dosed. My TSH is 0.02.

Clutter profile image
Clutter in reply toAnette65

Anette65,

Do you have a result for T3? As long as T3 is within range you are not overmedicated because TSH is low.

Anette65 profile image
Anette65

T3 is 3,0 (ref 3,1-6,8)

T4 is 13 (ref 12-22)

silverfox7 profile image
silverfox7

You are t on enough medication. When you are taking any form of T3 then TSH will be suppressed and FT4 can be as low as halfway down the range but FT3 should be high in the range. No wonder you don't feel well.

Framboise profile image
Framboise

Anette there are still a few reports on other sites of people finding batches of ERFA which don't seem the usual strength and/or are making them ill. Most of us who had problems changed to other brands, but some in Canada weren't able to and they're the ones who are now having problems. The number you quote is the DIN number - Drug Identification Number - not the batch number, so you may find more if you find the batch number and expiry date and do a search for those. As a matter of interest how long have you been taking ERFA, were your previous blood test results similar to what they are now and have you changed your dose at all?

Anette65 profile image
Anette65

Thanks, Framboise. I will find the batch number and google it. I have been on them for about 5 years. Here in Sweden most doctors are just interested in TSH and they think mine is too supressed ofcourse. They dont seem to have a clue about the other results. the last testing was in april with the results I wrote above. The thing that recently changed is that Im on T3 as well as NDT. Im taking 20 mg T3 three times a day and 125 mg NDT twice a day.

Terrileigh profile image
Terrileigh

I have been on Erfa all of 2017 and did great bought a year supply beginning of 2017 when I bought more in Dec. Of 2017 it had changed and made me feel over medicated headache and back of neck stiff. It is now on back order till Feb.6 keeping my fingers crossed it will revert back to the way it was. 🤔

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