Love to hear your Thoughts and opinions (hopefully guidance too)

I don’t know where to start when it comes to thyroid. It’s hard connecting or finding people who has been in same position as myself hence why I’m here. Online. Hopefully by your thoughts and guidance or opinion it will bring me hope and peace. ☺️

Grab a tea ☕️and biscuit 🍪, it’s long 😅

I was diagnosed having Graves’ disease at 22 which was a shocker tbh and weird cause it was two month after my wedding.

The symptoms was strange as it was pregnancy like symptoms but loss a great amount of weight, every time I ate I vomited and couldn’t keep fluids down too. Had dizziness and blackouts, heart palpitations and tremors.

I did request for a full blood test at that time By the NHS but got refused and they thought it would be better to shove a camera down to see my stomach. I knew something was wrong and had a feeling by shoving a camera they wouldn’t pick up on anything.

I did put my foot down and in their words they said “sorry we can’t help you it’s best if you go else where with that request.”

So instead I took a private route (spending at least a £1500) for consultant to tell me I had overactive thyroid and in their words was “shocked” at my result with all my levels very high. So I had to wait for my medication dosage amount since they need to get it right.

(If I still had the paperwork I would’ve showed you 😂 we’re talking nearly three or four years now. I remember it was over 60 my T4 levels.)

Whilst waiting, my condition worsen to the point I had to wait two hours for an ambulance and they rushed me into resus where my heart rate was high, had me on heart monitor and my calcium and glucose level were very low and my white blood cells was low too.

I remember having so many nursing questioning my condition and how it’s rare and how in my age I should be lively and running about. I knew nothing of overactive thyroid since my mum and grandma were under active but they had their diagnosis after having children.

I felt as though I had no support from anyone not even family or in-laws or even doctors.

After three days in assessment unit with endless of drips and Iv fluids they discharged me and gave me Carbimazole, told me the dosage taken and didn't discuss the side affects.

Fast forward December 2021 (age 23) I had a chemical pregnancy, the doctor did say because of the carbimazole and the high levels of T4 and TSH that’s what caused it however since it wasn’t a official pregnancy diagnosis and I wasn’t pass the 6 week mark they said they didn’t want to put it on the system and just go home and not think about it.

They did state to stop taking it if I’m trying for children. (Which I did)

At that time I was under an endocrinologist and she prescribed me Propylthiouracil.

I had a relapse 6 months later (due to stressful environment) and it was decided that I should give up the thought of children and start thinking of my health.

It did break me… a lot and fell into depression.

People may think I’m too young however I achieved a lot since the age of 16, working since that age even having my first house (which is rented out) and now I’m at my second house with a cat to keep me company.

So I agreed to the doctor decision, and because of my age I had to wait until I’m 24 to go through radiation therapy to get it underactive.

Last year I went through radiation therapy and had to isolate for 4 months due to the dosage.

A month after treatment I started taking levothyroxine.

Again the consultant was shocked due to the improvement of my health along with other factors at this point I feel like a test subject to them due to my age and the condition and the treatment of it. I feel used lol.

I went through another chemical pregnancy but this time though I was out 6 months waiting to try and get pregnant again phase.

the doctor again said it could be due to some radiation in my blood hense why it happened.

again I feel lost and disappointed at myself and still till this day, I desperately tried to find people in this position who has been in a similar situation but had no luck.

Current day: I feel a lot better however I’m experiencing brain fog and tiredness but I’m taking 125 mg of levothyroxiene to get my t4 levels to 2.5, I’m on 3.6 atm.

I’m on a diary free diet and doing HITT exercises which improved my health massively along with my thyroid levels. I strongly recommend anyone who is trying to get their thyroid control to do this along with dry or wet cupping to get rid of the toxins inside.

Questions

1. did anyone have successfully pregnancy stories when it comes to thyroidism? If so please share or tips 🥲😅

2. What pre vitamin supplements do you take whilst trying but not affect the thyroid levels?

3. Any tips for a 26 years old with thyroid problems (anyone older whose been through it the longest)

I hope to hear from your responses soon, thank you for taking a time to read my story 🤍