After 6 weeks on 87.5 levo and 10mcg t3 my results were -
(nb** My vitamins b12, d and folate are all ok/high. I’m on vitd and k spray 3000. My ferritin is slowly improving and has gone from 21 to 32. I am also gluten free )
0.057 (0.27-4.2)
t3 5.5 (3.1-6.8)
t4 15.5 (12-22)
I had muscle aches and fatigue creeping in again so
I then increased my levo to 100mcg (as per advice from forum and gp also said the same).
I started off ok on the increase, but then the muscles pain went off the charts….until week 5, and then they settled down to just low level. I’ve not needed any painkillers for quite a few days which is a massive improvement.
These are my latest results after 9 weeks on 100mcg and 16 weeks on 10mcg t3 (same ranges).
Blood test - taken at about 7.45/8am (by the time i finished faffing about) fasting, 24 hours after last levo dose and 12 hours after last t3 dose (I take split doses 5mcg/5mcg)
t3 - 6.1
t4 - 17.8
tsh - 0.008
These look pretty good I think… and a lot of my pain and fatigue has eased off, but I still don’t seem to have any stamina at all and I run out of steam very quickly. My weight has literally not changed at all. My brain seems to be working better. I actually started to read and finish a book. Yes. A whole book. Start to finish. unheard of!
Q1. Do you think I just need to hold now at these doses for a while and see how it goes? None of my improvements have been instant…more of a slow progress.
Q2. Also, I’m just finishing my prescription of sigma 5mcg t3 and i’ll be moving to thybon henning. Is it best to just move from one brand straight to the other?
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Thanks, Tatty. That’s what I was thinking. I think in the past it took me longer to feel the benefits of an increase. I’ll stick with it as things are.
Assuming all tests same time of day with same doses same hours beforehand.
yes I’d hold and test in 12 weeks. Glad to hear some improvement. You might find a difference in brand, I found thybon smoother, some say weaker, it’s very individual. If you do switch CJ the. I’ll change tack and suggest it’s worth testing 6 weeks after change to see how it’s going. Most of all avoid chopping and changing too many variables.
I switched to Thybon from Roseways own compounded and went from 2.5-5-7.5mcg on Roseways over 9 months to 10mcg Thybon to keep the same levels. I’ve tried 15 and it pushes me over range so I’m about right.
Take care with post exertional malaise, the minute you feel better you over do it, boom bust boom bust, try and smooth out the activity and learn to rest before and after anything that is more than not much. Easily said but works wonders.
Thank you Regenallotment . Yes, all tests done roughly same time of day. I’ll do the change to Thybon and test again as you say after 6 weeks to check progress. Good idea.
I had about 3 really good weeks around about week 5 after starting the increased levo and yes - i think i overdid things. I really need to try to do things in stages and factor in rest time. Thanks for the advice.
Hehe!! They certainly do. I’ve just been running out of patience with all things thyroid lately…then I rebelled…and then…CRACK! PING! OOP! Yep…There go ma wheels…
I was taking magnesium citrate in powder form for a long time but apart from helping with constipation I wasn't getting all the benefits other people seemed to, so I've recently switched to a combo product which contains magnesium citrate, magnesium bisglycinate, and magnesium malate. So far it is going well, but it is still early days. I have found magnesium generally helps me to relax.
It shows that less than 1% of the magnesium in the body is in the blood stream. And when the amount in blood becomes low the body steals it from the bones, muscles and other organs. So it is rare to find magnesium deficiency in the blood, but other parts of the body could be deficient without it showing up in a test.
Thank you humanbean . I’ve trialled different kinds of magnesium and every single time I start a new type after about a week or so I get a really bad irritable bladder. This stops when I stop the magnesium. I looked on the internet and found a couple of places where other peopke had mentioned a similar problem. It’s a real pain because in the beginning when I start the magnesium I feel really relaxed and sleep well, but then the bladder issues starts. I’ve tried to lotion but its too greasy and it doesn’t seem to have the same effect as the tablets. My friend uses magnesium oil and advised me to try that.
Before supplementing anything, I would say that people should always look up symptoms of deficiency and toxicity, and if it is feasible and possible, test before supplementing.
I'm with Tatty, it can take a good few months for things to settle and hopefully you'll notice subtle improvements creeping in.... with the change over I'd do a straight switch and see how you feel, it's handy to check your resting heart rate, temperature and BP and then check your levels in 6-8 weeks to see where it has settled
Thanks TiggerMe . Yep, you’re both right. My progress has been such a slow burn up to now. I haven’t had that “whoopeeee” kind of improvement that some people seem to get. I really wanted that! I also wanted my tsh to stay in range, but that bit the dust too! But I am making slow progress. I was ill for such a long time before diagnosis and maybe that slows it all down too. I checked my temp and bp yesterday and they are ok. My pulse has gone up from a out 60bpm to 80 and that seems to be bedding-in at that level now. For a while it was swinging a bit between the two. Thank you for your advice about the switch - that’s one thing I really wasn’t sure of. I do straight switch, monitor how everything goes and retest around 8 weeks. Thank you so much.
Have you managed to ditch the Omeprazole? How are your sex hormones? Your ferritin was on the low side so hopefully that will be picking up with the lighter periods 🤞Vit D 70-80nmol/L could be bumped up to 100-150nmol/L
I had the initial lightbulb moment with T3 (mind you I felt ready for the knackers yard so any improvement was massive) but over 2 years on and I'm still improving, for me it had taken a toll on my cortisol levels and sex hormones were dire, I've sorted those out and my endurance and recovery have improved which is a far cry from the PEM of the early days
No, unfortunately the omeprazole is the bane of my life. I forgot to take it the other morning and by lunch time I definitely remembered. I’ve tried a couple of other avenues/suggestions, but the only thing that works is the omeprazole. Maybe once the thyroid treatment settles a bit more it might be easier to ditch.
Sex hormones are all ok. I’m on patch hrt sequi and will ask this year about trying a conti patch again although i’ve tried twice to change over, but had issues. The thyroid gp said my oestrogen level was ok, but may need a slight tweak after the thyroid issues settle a bit more. My testosterone is just over the top of the range, which is odd because I’m not on any testosterone treatment.
I’m using vit d and k 3000 oral spray daily. I’m taking a spatone sachet daily too.
Cortisol was a little bit low in the morning so I tried orange juice and coconut water, but the coconut water gave me bloating and stomach ache. I’ve been adding more salt to my food.
I think I’ll get my all vitamins and ferritin checked again in a couple of months when i get my tfts done again and see where everything is as a whole.
I'd suggest an extra squirt of D3 daily until we actually see the sun again
Spatone contains 5mg ferrous iron which they state at best 40% (think it's more like 15%) absorbed so it's a very small amount
Did you ever try the burp test it could be you suffer with acid reflux as your breakfast has sat undigested due to a lack of acid and then backs up? Or they ought to investigate you for a hiatus hernia or ulcer?
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Consultant review on tomorrow. Latest bloods. Any comments gratefully received, thanks 😃
Looking for advice on my latest results.
Results Advice
T3 taken away, looking for a new source please :)
