For years I have been on 125 mcg Eutirox and 15 mcg Cynomel T3 (split up 3 doses at 5 mcg, total 15 mcg per day). Also taking Amlodipino 5 for last 3 years. I have been feeling well, twice annual blood tests and T3, T4 always in good range, TSH has been around 0.10. Lots of energy, no pain in thyroid and blood pressure under control.
That was until middle of October when I developed high blood pressure, high pulse, slept really bad and ended up at the emergency ward 3 weeks later. They told me to check my thyroid medication and added Esidrex, another blood pressure medication. I dropped down to 100 mcg Eutirox, 5 mcg Cynomel and felt better but when I removed Cynomel I felt amazing. It was like the body went into relax mode. That only lasted for a few days until pain and inflammation in the thyroid started. I felt awful so upped Eutirox to 112 mcg, several days later I added 5 mcg of Cynomel because the pain in the thyroid was so bad. It's now been about 10 days and the thyroid still hurts and the blood pressure is higher again but not as bad as before.
How do I solve this? Keep thyroid inflammation and pain low and at the same time the blood pressure in normal range??? I am desperate π
Maybe up Eutirox and remove Cynomel again?
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It's horrible when things go a bit haywire, have you got some results along with ranges you can share so that we can see what has been going on? Ideally the more history the better added to you profile for people to refer back too
Generally any meds for lowering BP will also lower thyroid hormone levels which can also raise BP π
Adjusting dosing without blood tests to guide you risks adjusting the wrong way and getting in more of a pickle
Have they run any other tests for kidney, liver, cholesterol?...
The ranges for Cholesterol are noted between the ( ) under the July results.
TSH range (0.23-5.50). 5.50 is way too high, in my opinion
T3 free range (2-2.40 pg/ml)
T4 free range (0.93-1.80 ng/dl)
I feel like my body is not in balance at the moment, maybe too much blood pressure medication, too little Eutirox. Seems like any amount of T3, even 5 mcg, gives me high blood pressure. A bit frustrating and don't know how to balance "the system ". Any help is much appreciated.
In the past it was OK I guess. With Hashimotos I am not sure what I should feel like but I didn't have any thyroid pain and seemed to have enough energy. It's only this year I started to feel strange, I thought it was what ageing feels like, I am only 54 π At the moment I don't feel well so am willing to try new things. If I remove T3 again, how much can I raise the Eutirox? Not sure how to remove the blood pressure medication because I think the different medications contradict each other....however, I am only guessing.
Are you on HRT as this can effect thyroid levels? Low sex hormones also feel like low thyroid symptoms π¬ Your a young'un like me so finding your sweet spot should put a spring back in your step π
Your July results don't suggest a drop in T3 is needed just a rise in T4, I'd suggest doing this and giving it a few weeks to see if you can then gradually lower your BP tablets
It does make me wonder if they put you on BP tablets a few years ago when you actually needed your T4 tweaking
Yes I am on HRT since many years. Activelle now. Tried the creams but I live in a warm country and I would just sweat it away.
I found fT4 results from 1,5 years ago and it was 1,1 so still low, fT3 was 2,3.
If I am on 112 Eutirox now, how much more can I add? Maybe try 25 mcg more?
Was thinking about not taking the T3 today. When I removed it completely for a few days my whole body slowed down and it felt amazing and calm until the thyroid pain came back.
Free T3 (fT3)β3.45βpmol/Lβ(2β-β4.4)β60.4%
So if we compare the two results it could be that a small reduction in T3 rather than stopping is a middle route whilst increasing your T4 dose, changing both at the same time isn't ideal but as things are already up in the air...
Ideally don't increase T4 by more than 25mcg and wait 8 weeks to retest so if you do this your dose would be 137.5mcg so only a 12.5mcg increase on your previous long term dose which would be a start with a good chance a further increase will be needed, often changing by 12.5mcg is a better way to sneak up on your sweet spot
Dropping your T3 from 15mcg to zero is a bit drastic we recommend only changing by 5mcg unless over replaced which you aren't and improving your fT4 is going to take a few months
Thank you. I'll try that. So will be on 137.5 Eutirox and keep T3 at 5 mcg for now and retest in 8 weeks. I have found many (most) doctors don't understand Hashimotos or thyroid problems well at all, hence the drastic reduction .
Blood pressure is OK this morning and I slept well, that helps a lot.
Personally everyone has their Optimal FT4. I personally feel my best at FT4 at 1.4-1.5. It took me a long time to figure it out. You might have to see where your Frees feel the Best for you.
Could you give that as a percentage? I like mine at 50-60% as I'm also on a combination of T3&4... hopefully Europe taking small steps will come across her sweet spot on the way up
Percent wise I wouldn't know. But the FT4 is more on the higher side. Many are happy at FT4 at 1.2. I need personally FT4 at 1.4-1.5. These measurements are based on USA labs.
Thank you for figuring out the percentage. For some reason I don't know how to. For my FT3 I'm fine with 3-3.1. I would assume that when I had my own thyroids that must have been my set points. I need my FT4 at a higher range.Thank you again Tiggerme.
This is very interesting. Would you know please how I can figure this out for myself. I never understood it when it was first bought on to the forum. Thank you in advance.
Hi, as you were so helpful before I hope you donΒ΄t mind me asking your thoughts about why I still feel awful.
I tried to up the dose of Levo but every time I tried, I got increased heart rate or high BP again so I have basically stayed on 125 levo and 5 mcg of T3. I have horrible pain in the thyroid again and is that due to reducing the thyroid medication too much in the beginning? Just out of interest because I felt so bad I did a blood test (yes i know I should have waited longer but when you donΒ΄t feel well you do things....) Anyway, 2 weeks on 125 levo and 5 mcg T3. Date 3 January
FT3 3.45 (2-4.4) same level as previously when I was taking 125 levo and 15 mcg T3
FT4 1.46 (0.80-1.80) strangely this level is higher with less medication!? before 1.12 range
TSH 0.82 (0.23-5.50) I guess this is better as it used to be 0.07 but maybe this is the cause of the thyroid pain?
Just in the last week or two the BP seems to be steady and as I had so much pain in the thyroid I have added an extra 6.25 mcg a day of Levo in the last 2 days and pulse and BP seem to hold up ok.
I think the magnesium and potassium have helped with lowering the BP and after what I read they are supposed to help. Where do I go from here? I think keeping the TSH low has helped keep thyroid inflammation low all these years as I have had no pain for 12 years. Should I maybe try to take and extra 5 mcg of T3 a day (total 10 mcg) and stay at 125 levo...... Having high BP is equally as horrible as pain in the thyroid and feeling like I am getting the flu. π
Do you keep the timings the same for each blood test, fasted, water only before 9am? 24 hours after last dose of T4 and 12 after T3? Always taking on an empty stomach 4hours away from other supplements and Amlodipine
Yes always the same procedure, amlodipino in the evening, thyroid meds in the morning 2 hours before breakfast. Yes 24 hours between thyroid meds and blood test and fasting. As I only take 5 mcg T3 and can't divide it any smaller I take it in the morning with Levo so more than 24 hours between t3 and test the next morning.
Seems like the thyroid is producing more hormones with less medication π€
I'm thinking your body is just a bit up in the air with several large changes and really needs some time to settle, with your fT3 at 60% 24 hours after last dose it suggests 5mcg of T3 is enough
My sympathy for you. With my personal thyroid journey since TT I found that many times the thyroid doseages are not faulty. What I did learn subsequently was that nutrients eg vitamin D/K2, Iron/Ferritin, B12/Folate,Magnesium are a tremendous factors that play a big role in our thyroid meds to work Optimal for us. Dr's either don't know or don't share this vital information. Instead we keep thinking that it's our thyroid dose that is off. We have to be pro active in our wellbeing.Best wishes for fast resolutions.
Thank you. I've been on this up and down journey for more than 12 years. Mostly been fine and this blood pressure problem is a recent and unwanted addition. I do keep an eye on my vitamin levels and other things as I know it's all connected. I am also hoping for a speedy solution. π
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