Following up on my previous post, I have been for another blood exam including a vitamin control as I still feel bad and unhealthy. The doctors keep insisting that is not my thyroid that causes my problems but they also refuse to tell me what else can be.I have been checked from head to toe and nothing was found. In addition, all other doctors pointing to the clinic I did my therapy and that all my symptoms are due to unbalanced hormones.
My lab came on Friday and here is where I am standing:
Hamatocrit: 39.1 (37-43)
TSH: 2.92mIU/ml (0.27-4.20)
T3: 2.97pg/ml (2-4.30)
T4: 1.45ng/dl (0.90-1.90)
B12: 686pg/ml(197-771)
Folate: 9.3 ng/ml(3.9 -100)
Ferritin: 57ng/dl (15-150)
Iron: 125 mg/dl (37-145)
D3: 34 ng/ml (30-100)
Cortisol, basal : -8.3mg/dl (10-25)
I feel so confused and unpredictable what each day brings as my symptoms varry and have left my life behind. I barely can leave the bed from fatigue, brain fog, lightheadedness, my blood sugar drops in a second out of the blue and cannot see very well although I have visited twice an eye doctor and nothing was found.
I am currently taking 50 levothyroxyn daily and per my endocrinologist my TSH should drop further in the next 3 weeks until he sees me again - Goal is to drop it to 1.50 where I feel the best.
We tried to increase the daily dosage to 63 but my THS dropped to 0.4 from 9 just in 6 weeks and I was suffering with overfuction symptoms, so since August I am back to 50.
Any advice will be apreciated!
Thanks
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Gigi1806
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they didn't even mentioned it. I discovered it when I requested a copy so I can check all values. But as for the doctor, it doesn't end up that I don't feel good for months now, which is shocking to me
It's below range, so I think you should point out to them that you might have Addison's and they should test for it. Your low cortisol is probably why you're having trouble raising your levo.
Gigi1806 Could you check back to your original test results please, as there would appear to be a typo in the line "Cortisol, basal : -8.3mg/dl (10-25)"
If that was indeed supposed to say 8.3, you need to follow up on that urgently. An early morning (8-9am) cortisol blood test returning low results indicates adrenal insufficiency (or an even rarer cyclic ACTH condition). Post radioactive therapy, likely alongside various medications, you need to find out why your cortisol is low (initially checking for primary vs secondary vs tertiary adrenal insufficiency), and manage it using hydrocortisone (or equivalent) if it wasn't transient. As 3 months have passed, your practitioner might insist on repeating the early morning cortisol blood test, but if it wasn't transient (or if the practitioner decides to work from the existing result) then you need a referral to an endocrinologist experienced in adrenal insufficiency (most endocrinologists are not unfortunately). The endocrinologist should test your ACTH level and perform a SST (short synacthen test, although goes by other names too, particularly outside the UK). The SST result would be available same day. The ACTH result can take a couple of weeks or so to come back. Regardless, with low cortisol, you should be started on hydrocortisone (or equivalent). Depending on the results of the SST and ACTH test, you might need further tests and possibly a scan (or two), but the key thing is to get you started on hydrocortisone (or equivalent) once low cortisol is confirmed.
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